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STAFF EDUCATION OPPORTUNITIES CLEAR Climate, Lived Experience and Resilience Community Consultation Vancouver Coastal Health During an extreme heat event, the 2021 heat dome, VCH and non-governmental partners reached out to residents in VCH’s area with resources and supports. Now VCH is engaging vulnerable populations - people with disabilities or chronic conditions, older adults, people experiencing homelessness or marginally housed - in focus groups, one-on-one phone conversations or surveys . In order to plan for the future, VCH wants their input on how they managed heat and other climate-related events during 2021-2022 and how to plan for the future . Individuals can register to be contacted or complete a survey. Organizations can also submit on behalf of a group. More information and to register or complete the survey here PATHWAYS: BC COMMUNITY SERVICE DIRECTORY PathwaysBC “Publicly available services and programs, in participating communities.” The Directory is a joint initiative between Doctors of BC’s General Practitioner Services Committee and the BC government with a support team that provides the technical infrastructure. It is free, searchable by the public and has many filter options to narrow down keyword searches. Search here Organizations can apply to list their services in categories such as,.Navigation Support:Seniors Services ; Health & Fitness: Seniors ; Caregiver Support Groups; Seniors Centre:Seniors Activities; Loneliness/Social Isolation; Outings/Day Trips etc More information about access to Pathways here RESPECTFUL ENVIRONMENTS, EQUITY, DIVERSITY , INCLUSION UBC Faculty of Medicine “… create respectful, diverse, inclusive learning and work environments that are anti-racist and that support the exercise of human rights for all members of our community.” Monthly 12:00-1:30 webinars with presenters from various IBPOC communities aiming for “community partners to implement action plans that will lead to systemic and behavioural change.” Events , Blog, and Resources. Date: March 27, 2023 12:00-1:00pm virtual Register here SENIORS OUTDOOR ACTIVATION TOOLKIT 8-80 Cities and Woodgreen Community Services, Toronto “… tells the story of over 100 seniors who saw the COVID-19 pandemic as an opportunity to flip the standard for seniors programming in parks and public spaces .” Benefits, making the case, evaluation, recommendations. Report here MOBILIZING TO PROMOTE HEALTH & WELL-BEING FOR OLDER ADULTS CORE Healthy Aging Canada “Launching a series of monthly 90-minute webinars… to mobilize action on various issues by focusing on effective models and the policies, practices, partnerships, and networks that support them. Through interviews and discussions with practitioners, researchers, and policy-makers, each session will explore a topic and the key issues and challenges.” Q&A + opportunity to join a discussion group . ​ Housing and Living Arrangement Options for Older Adults: At Home. In Community Recording here Re-orienting Health and Social Services for Older Adults: Provincial Strategies for Community-Based Seniors Services Webinar recording here Age-friendly Communities: A Key Strategy in Promoting the Well-Being of Older Adults Webinar Video here CANADIAN INSTITUTE FOR SOCIAL PRESCRIBING (CISP) Intersectoral collaboration project anchored by the Canadian Red Cross “CISP is a new national hub to link people and share practices that connect people to community-based supports and services that can help improve their health and well-being… part of a global movement of people bringing community capacity and healthcare services closer together by directly addressing the social determinants of health , from loneliness and social isolation to racism and ageism to income and housing and much more.” Newsletter, events, reports, resources, etc. Website here ​ INTERGEN-NS North Shore Community Resources Intergenerational Program Directory and Resource Hub that “helps connect different generations on the North Shore while providing resources to help community partners establish intergenerational programming … These projects have been launched in order to actively facilitate a North Shore community that is connected, inclusive, and age-friendly.” Information here FLIPPING STIGMA ON ITS EAR TOOLKIT “The discrimination caused by stigma that accompanies a diagnosis of dementia needs to be ‘flipped on its ear’! The purpose of this toolkit is to recognize and respond to this stigma and discrimination . It has been designed by people with dementia to help others – including other people living with dementia, the people who support them, and those who do research – to address the challenges of stigma and discrimination.” Video clips demonstrate interactions and stimulate discussions. Explore the website and sign up for a newsletter here Aging Well Education - Ongoing Dementia Education & Opportunities ALZHEIMER’S DISEASE AND RELATED DEMENTIAS IN INDIGENOUS POPULATIONS: KNOWLEDGE, NEEDS, AND GAPS National Collaborating Centre for Indigenous Health “ This report summarizes what is known about the knowledge, needs, and gaps of First Nations, Inuit, and Métis peoples and healthcare practitioners working in Indigenous communities related to dementias…an overview of the barriers and facilitators of knowledge translation and exchange about dementia care and management.” Explore the August 2022 report here STORIES FOR CAREGIVERS A series of 2-minute videos “‘Therapeutic Fibbing’ is a 4-part heart-opening dramatic comedy web series featuring an everyday Canadian family utilizing — with varying levels of success -- a form of compassionate lying to navigate communications with a loved one living with dementia.” YouTube here Facebook here RECENT ADDITIONS UNDERSTANDING SOCIAL ISOLATION AND LONELINESS AMONG OLDER CANADIANS AND HOW TO ADDRESS IT National Institute on Ageing “Social isolation and loneliness are increasingly recognized as important public health concerns. Globally, as well as in Canada, these issues have significant implications for the health and well-being of older persons .” This is one of many reports and other resources (news, National Seniors Strategy) of concern to seniors, some offered in many languages . Explore here BUILDING DEMENTIA-FRIENDLY COMMUNITIES ONLINE COURSE Alzheimer Societies of Canada “The Building dementia-friendly communities course…a self-paced 75 minute online, interactive course in four modules …is currently available in English and French…designed for professionals working in the recreation, library, retail, restaurant and public transportation sectors…knowledge and skills needed to increase support, inclusion and accessibility (both in the social and physical environments) for people living with dementia.” Information here Register here PROGRAM PLANNING FOR GRANT WRITING United Way of British Columbia “Effective grant seeking…involves strategic prospect research, detailed project planning, and articulating a compelling case, all while employing efficient tools, processes, and systems.” This online interactive session includes: • creating compelling project rationales/needs descriptions; • exploring planning methodologies, including Theory of Change and Logic Models; • incorporating measurable outcomes. Recording here Slides here ALZHEIMER'S DISEASE AND RELATED DEMENTIAS IN INDIGENOUS POPULATIONS National Collaborating Centre for Indigenous Health “This report summarizes what is known about the knowledge, needs, and gaps of First Nations, Inuit, and Métis peoples and healthcare practitioners working in Indigenous communities related to dementias…It provides a review of First Nations, Inuit, and Métis understandings of dementias, their perceptions of healthy aging, and their preferences for care …an overview of the barriers and facilitators of knowledge translation and exchange about dementia care and management…” Explore the report here PROMISING MODELS OF SENIORS' TRANSPORTATION United Way British Columbia & SFU Cities, Health, and Active Transportation Research Lab “This report provides the findings from case studies…to profile promising models of seniors’ transportation and to learn what facilitates or impedes the success of these services. We used extensive selection criteria to select six services that covered a diverse set of models and geographic contexts.” Read the report here LIVING MY CULTURE Canadian Virtual Hospice “Quality palliative care helps you honour your culture, spirituality and traditions…people from various cultures share their stories and wisdom about living with serious illness, end of life and grief to support others.” Indigenous cultural safety training : Advanced illness, palliative care and grief and “Coming full circle: Planning for your care a booklet to ensure Indigenous Peoples’ choices for their future healthcare are known and respected.” Also videos and insights from representatives of eight global cultures. Information here HEALTHY AGING CORE CANADA United Way BC & Employment & Social Development Canada “Healthy Aging CORE (Collaborative Online Resources and Education) is a platform to c onnect local, regional, provincial and national non-profit, government, and academic organizations and coalitions that focus on programs, services, policies, practices, and research aimed at supporting older Canadians to age in place in their homes and communities….All content on CORE is vetted …CORE is designed to connect and coordinate with other relevant networks, and not duplicate.” Features: Resources…Training & Events…Groups & Activity….Programs & Initiatives…Funding Opportunities ​ Join email list here AGING AND THRIVING IN THE 21ST CENTURY Institute for Community Prosperity, Mount Royal University, Calgary “…a scan of issues, trends, system dynamics and innovations…guided by the question: What factors are preventing older Canadians from flourishing, and how might we transform systems to maximize the choice, dignity, mobility, security, and trust accompanying an aging population transitioning into less autonomous living circumstances?" Report authored by James Stauch here FROME'S COMPASSION PROJECT UK Men’s Shed & Health Connections Mendip-UK “Compassionate communities help to reduce isolation and loneliness and bring a sense of belonging. Social relationships are the most effective intervention for improving health and longevity. Frome’s care combines a compassionate programme of community development with routine medical care…three key elements : making the most of the supportive networks of family, friends and neighbours…building networks of support for the routine matters of life…linking to community activity , such as choir, walking groups, men’s sheds, talking cafes and other interest groups where people can make friendships and share life’s events.” This event has passed. Health Connections Mendip website here Frome Shed website here ARCHIVED TRAINING WEBINARS Healthy Aging CORE Canada “CORE regularly hosts training events on relevant program and organizational development topics. These sessions are recorded and archived on CORE..and this compendium provides a listing of categories and links so that you can access them at your convenience.” Available here THE FUTURE OF AGING IN PLACE IN CANADA University Health Network Open Lab, Toronto " Through participatory design with seniors and inspiring demonstration projects, Vertical Aging pushes us to imagine and create possibilities beyond the current crop of institutional options . . these projects challenge conventional thinking about aging in contemporary urban society " Webinar recording here SOCIAL NEEDS OF OLDER ADULTS CAN'T BE MET BY TECHNOLOGY ALONE CTV article; research by Dr. Yue Qian, UBC Sociology “…virtual interaction, like phone calls, video calls and texting during pandemic lockdowns were not helpful on their own as an alternative to face-to-face time for people over 60. ‘Our findings demonstrate that face-to-face household contact is crucial to sustaining older adults’ mental wellbeing,” Qian said.’” ​ CTV article here Frontiers in Sociology Article here METRO VANCOUVER HOMESHARE Canada HomeShare “The goal of HomeShare is to foster intergenerational relationships , support aging in place for older adults while simultaneously addressing the affordable rental crisis faced by students…a facilitated model of shared housing to Metro Vancouver… for older adults who would like to share their home with a student for the coming school year …up to seven hours per week of assistance around the home and/or companionship… Canada HomeShare Social Workers create matches that meet both the needs of the home provider and student using a framework designed and developed by the National Initiative for the Care of the Elderly.” Paused in 2022, but restarting in 2023. Sign up here for notification ENABLING CONNECTIONS - A TABLET LENDING LIBRARY South Granville Seniors Centre & Partners “The four elements of the Enabling Connections program are: a tablet lending library , digital literacy mentoring , a virtual senior’s centre , and knowledge sharing with other organizations . The Enabling Connections project is focused on creating connections between individuals and creating a sense of community and mutual support, peer to peer.” Information here CLOSING THE GAPS: EMERGENCY PREPAREDNESS, RESPONSE AND RECOVERY FOR OLDER ADULTS Canadian Red Cross; National Institute on Ageing “This is a recent report…that includes 29 Evidence-Informed Expert Recommendations to Improve Emergency Preparedness, Response and Recovery for Older Adults Across Canada…directed at Community-Based Services and Programs…Webinar features Dr. Samir Sinha, lead author of the report.” Report here FROME'S COMPASSION PROJECT UK Men’s Shed & Health Connections Mendip-UK “Compassionate communities help to reduce isolation and loneliness and bring a sense of belonging. Social relationships are the most effective intervention for improving health and longevity. Frome’s care combines a compassionate programme of community development with routine medical care…three key elements : making the most of the supportive networks of family, friends and neighbours…building networks of support for the routine matters of life…linking to community activity , such as choir, walking groups, men’s sheds, talking cafes and other interest groups where people can make friendships and share life’s events.” This event has passed. Health Connections Mendip website here Frome Shed website here COMMUNITY COUNSELLING SERVICES IN BC Ministry of Mental Health and Addictions, Community Action Initiative “An extension of government funding to 49 local community counselling agencies provides access to low- and no-cost counselling services. Community counselling provides flexibility for counsellors to meet clients through outreach, in-person counselling or through virtual supports. In some community agencies, counsellors connect people to other services and supports.” Counselling services offered within BC’s Health Authorities here Aging well education material Back to Top AGING WELL EDUCATION - ONGOING These are virtual educational resources for the seniors'-serving sector that can be joined or viewed on an ongoing basis. COVID-19 AND THE DIGITAL DIVIDE (Centre for Ageing Better, UK) Key findings from research involving i) > 250 seniors’-serving organizations about their service delivery efforts and ii) 50-70 year olds with incomes less than $42k about their use of the Internet and digital devices. Identifies and shares good practices for supporting digital inclusion and skill development during the pandemic and beyond. Describes how supports improved seniors’ knowledge and understanding of digital skills. July 2021 report here COMMUNITY DEMENTIA CARE AND SUPPORT (Healthcare Excellence Canada) Webinar series: "Innovations that are supporting people living with dementia and care partners, closer to home…what’s working and what isn’t…help innovators figure out how they can spread and scale their innovation so more people living with dementia, and care partners can benefit.” Past webinars and newsletter registration for upcoming related learning opportunities here AGING YOUR WAY: CREATING AN AGE-INCLUSIVE CANADA (CanAge; Toronto Public Library) A series of upcoming free webinars plus recordings & key learnings from other 2021 webinars. Information here GLUU TECHNOLOGY TUESDAYS (GLUU Society; Government of Canada) The Canadian nonprofit on a mission to help older adults use technology to stay happy, healthy & connected. We make digital skills stick…offer free digital skills training for all Canadian seniors about Apple and Android mobile devices. Information here Register for Technology Tuesdays here (Recordings available if registered) DIALOGUE ON AGING SERIES WEBINARS (Providence Health Care) Recordings of 2020-2021series of monthly presentations about self-care for positive mental health, mindfulness, brain health, sleep health, physical activity, technologies, socialization, creativity & living well with dementia, COVID-19 and dementia strategies and support, etc. Typically 2-hour presentation including discussion. Recordings here CAREGIVERS OUT LOUD: A PODCAST (Family Caregivers of BC) “A series of conversations with caregivers that highlight the joys, trials, and self-discoveries that come along with this rewarding and taxing position... have support and balance through the stories of inspiring caregivers.” Information here BRAIN WELLNESS PROGRAMS (UBC Brain Wellness Centre) Wide range of topics and their effects on brain health: music, nutrition, sleep, mood, improv theatre, practical tips, mindfulness, role as care partner etc. Information here Subscribe to newsletter here WHAT DOES IT TAKE TO AGE IN PLACE? (Hon. Joyce Murray, MP Quadra Brunch Connections) Guest speaker Ms. Isobel Mackenzie, BC’s Seniors’ Advocate, discusses “how to plan successfully to age in place, and how to help others – spouse, parent, family member, or friend – do the same… communities, business, the charitable sector, and various levels of government must collaborate to ensure today’s Canadians can age-in-place safely, as long as they wish...challenges and solutions. ” Recording here NO PLACE LIKE HOME(SHARE): INSIGHTS FROM AN INTERGENERATIONAL HOMESHARING PROGRAM IN TORONTO “Toronto HomeShare Pilot Project that matched 11 over-housed older adults 55+ (overhoused with respect to physical home space, social needs or supports with activities of daily living), with post-secondary student homeseekers who were experiencing difficulty securing safe and affordable housing… ‘facilitated’ by social workers and housing experts…now fully funded as a program by the City of Toronto…expanded to the City of Barrie.” Webinar recording here RAINBOW STEPS TO LGBT2SQ SENIORS “This webinar discusses aging in the LGBT2SQ communities and how service providers can deliver more inclusive and supportive programming…. practical ways to provide sensitive, competent and inclusive community programming and services for LGBT2SQ individuals.” Webinar recording here ADDRESSING STIGMA: AGING AND OLDER ADULTS (UWLM CORE Healthy Aging) 55min. An overview of stigma as outlined in the Public Health Agency of Canada's (2019 report) 'Stigma Action Framework for Building an Inclusive Health System' Recording here 2019 Summary video (Voices for Inclusion 4min) here HEALING IN PANDEMIC TIMES (Northern Health, Indigenous Health, NCCIH) An animated video reviews key terms such as stigmatization, stereotypes, prejudice, and discrimination in an easily understandable way (4:32 min). Related publications include Thinking About Cultural Safety; Practical tips: Engaging People During COVID-19 ; Cultural Safety: Respect & Dignity in Relationships; Cultural Safety: Poster Series. Video and information available here PROMISING APPROACHES REVISITED: EFFECTIVE ACTION ON LONELINESS IN LATER LIFE In the United Kingdom,“the Campaign to End Loneliness believes that nobody who wants company should be without it…We do this by creating spaces for collaboration and support to the sector and by…building evidence, convening and supporting the loneliness community , making the case for action, public campaigning, campaigning locally.” Information here FUNDRAISING TRENDS OF 2021 THAT MAY INFLUENCE YOUR STRATEGY AND PREPARE YOUR ORGANIZATION FOR A SUCCESSFUL YEAR (Charity Village) Webinar (Feb 2, 2021) and information here SENIORS' TRANSPORTATION WEBINAR (UWLM CORE Healthy Aging) Learn more about the new Provincial Working Group on Seniors Transportation, the seniors-centred approach it will bring to its work, and its plans for improving seniors’ mobility in BC over the next two years. (January 27, 2021 presentation) Recording and slides available here Back to Top ALZHEIMER'S ASSOCIATION INTERNATIONAL CONFERENCE July 2021 Features reports from Medscape Medical News about advances in understanding dementia: risk factors, tests, diagnosis, treatments, epidemiology, practice guidelines and more. ​ Conference news here ENGAGING PEOPLE LIVING WITH DEMENTIA IN DECISION-MAKING ​ Canadian Centre for Elder Law ​ “We are seeking participants for a series of virtual consultation events on strategies for including people living with dementia in decision making. The events will run from July 2021 to March 2022. We would like to hear from people living with dementia and other disabilities. We are also recruiting family members and friends for virtual consultation events on the perspectives of caregivers.” ​ Project Status: Work in Progress Information here Poster - people living with dementia here Poster - caregivers here VIRTUAL SERVICES FOR PEOPLE LIVING WITH DEMENTIA Adult Cognitive Wellness Centre Langley, BC Virtual services for people living with dementia (Adult Cognitive Wellness Centre, Langley, BC) Regular midday and afternoon sessions offered monthly by qualified facilitators: Caregiver Support, Yoga, Easy Practice of Qigong Movement, Experience-Centered Care with H.E.A.R.T. Methodology™, Mindfulness Base Stress Reduction. Pre-registration & information here DEMENTIA EDUCATION & OPPORTUNITIES Dementia Education & Opportunities BEACON *SHINING LIGHT ON DEMENTIA ​ Pacific Spirit United Church, Vancouver, BC ​ In 2021, members of the congregation participated in a four-part series of online conversations “to further our sense of inclusion and love by opening meaningful conversations about what it means to be a dementia-friendly community…in our care for one another, in our building’s accessibility, and in our programming.” ​ Information here Four-part video series here DEMENTIA & SPIRITUALITY: PODCAST SERIES ​ Dementia Dialogue, Lakehead University, Thunder Bay, ON ​ "This new four-part series explores the many dimensions of spirituality along the dementia journey, as well as how our cultural background influences and nurtures spiritual perspectives.Our hosts have held interviews with a range of guests including people living with dementia, academics and researchers, spiritual care providers and care partners.” ​ Listen here HEALTH CARE DECISION-MAKING LEGAL RIGHTS OF PEOPLE LIVING WITH DEMENTIA ​ Canadian Centre for Elder Law, Alzheimer Society of BC ​ “A set of resources on the decision-making rights of people living with dementia: three short animated videos, and a booklet. The booklet is available in English, French, Traditional Chinese and Punjabi.” ​ Information here HEALTH CARE DECISION-MAKING LEGAL RIGHTS OF PEOPLE LIVING WITH DEMENTIA ​ Canadian Centre for Elder Law, Alzheimer Society of BC ​ “A set of resources on the decision-making rights of people living with dementia: three short animated videos, and a booklet. The booklet is available in English, French, Traditional Chinese and Punjabi.” ​ Information here

Westside Seniors Hub Notre organisation Dementia Ventures ... Renforcement des capacités Être impliqué Fireweed symbolizes the resilience that Dementia Ventures envisions bringing to people living with dementia and their care partners. This feisty wildflower thrives in challenging conditions and brings vibrant colour to diverse landscapes year after year.We are grateful that Yukon photographer Ivan Sundby has donated this High Weed image to Dementia Ventures. Like so many, Ivan’s family has been affected by dementia. Fireweed - Why this feisty wildflower? Dementia Ventures…Building Capacity ​ Dementia Ventures is creating community opportunities for people living with dementia to remain active and engaged. Hub goals for people living with dementia: create a more inclusive community and increase social citizenship . Living with dementia must include pursuing one’s passions! Communities that provide diverse opportunities demonstrate that people can remain vibrant contributors to community life well beyond a dementia diagnosis. Dementia Ventures is building capacity for the inclusion of people with dementia in meaningful activities! Westside Seniors Hub Partner Organizations are adapting current programs and creating new programs that are inclusive and motivate people living with dementia to socialize according to their interests. Want to get involved? If so, are you? experiencing cognitive difficulties / care partner / program leader / professional /motivated volunteer ​ You can assist Hub Partner Organizations develop appealing and sustainable arts , social , fitness and volunteer activities. Hub Partners want people living with dementia and their care partners to express their needs and desires. Partners also need program leaders, motivated volunteers, and professionals working with seniors to assist. Please Get Involved ! ​ The bigger picture…Collective action by elders and their care partners ​ From 2019-2022, the Westside Seniors Hub is focusing on Dementia Ventures in collaboration with the University of British Columbia and Lakehead University in Thunder Bay, Ontario. ​ The umbrella project for both sites is Building Capacity for Meaningful Participation by People Living with Dementia funded by the Public Health Agency of Canada. Get Involved Current Hub Partner Projects

DEMENTIA VENTURES UNDERSTANDING & LIVING WITH DEMENTIA In addition to many books written from different perspectives at your public library , here is online information Education & Links to Support Groups Research Engaging Activity Programs Media EDUCATION & LINKS TO SUPPORT GROUPS DEMENTIA ALLIANCE INTERNATIONAL Dirigés par les seniors: L e Hub est dirigé par des personnes âgées afin de mieux répondre aux besoins des personnes âgées. Il favorise un processus de vieillissement en bonne santé, reconnaissant que plusieurs générations et cohortes ont besoin de différentes activités et soutiens. Les aînés fournissent des conseils sur l'amélioration de l'accessibilité des programmes pour aînés et la prise en compte de la diversité des intérêts des aînés. Education & Links ALZHEIMER SOCIETY OF CANADA IN BRITISH COLUMBIA Full range of resources and services for people living with Alzheimer Disease or related dementias, their care partners and families, some available in several languages. Learn More DEMENTIA CONNECTIONS Dementia Connections Canada Ltd. “Dementia Connections is the only life-style magazine in Canada focused on supporting people living with dementia, care partners and families to live a good life, despite dementia… gain a deeper understanding of the lived experience of dementia.” Learn More SIMON FRASER UNIVERSITY "STAR" INSTITUTE STAR Science & Technology for Aging Research “In response to COVID-19 and in a time where self isolation is imperative STAR has curated a comprehensive set of resources and solutions …constantly updated.” Keeping Healthy, Community Support, Cognitive Health & Dementia, Technology Basics, Living Independently, Mobility & Transportation, etc. Learn More GAIA COMMUNITY CARE & WELLNESS SOCIETY BC-based “charitable organization aims to support the health and wellness of Chinese and other older adults and their families ….provides seniors and those caring for them with the knowledge, skills, and nurturing support they need to ease the stresses of aging.” Workshops, Webinars, Wellness Services (Qigong, Chair Yoga & Brain Games), Caregiver Wellspring etc. Learn More HEALTH CARE DECISION-MAKING: LEGAL RIGHTS OF PEOPLE LIVING WITH DEMENTIA Canadian Centre for Elder Law, Alzheimer Society of BC A set of resources on the decision-making rights of people living with dementia: three short animated videos, and a booklet. The booklet is available in English, French, Traditional Chinese and Punjabi.” Learn More CULTURAL AWARENESS IN DEMENTIA CARE: LIVED EXPERIENCES UWLM CORE Healthy Aging 105 min. Four panelists: Nadine Jans, clinical counselor . Ways to significantly improve behaviours, moods, and relationships for connection and meaning in the lives of people living with dementia and their care partners. ​ Dr. Sharon Koehn, social gerontologist . Experiences of dementia and access to services by older immigrants focusing on Korean and Punjabi communities. ​ Alice Lung, retired LPN . Care partner for husband with Early Onset Dementia. Cultural understanding about aging and dementia among Chinese immigrants.. ​ Elder Kat Norris, First Nations cultural educator . Awareness of proper diagnosis and care of indigenous persons living with dementia aligned with cultural understandings and traditions. Recording here Return to Top Engaging activity programs ENGAGING ACTIVITY PROGRAMS SMILE BRAIN PROGRAM - WEST COAST HEALTHY MEMORY SOCIETY “Smile Brain Program is 12 weeks, 90 minute program based for seniors to continue and increase their memory, self-confidence, and social connection with others….similar to a program in Japan.” Learn More ZINNIA TV “Improving quality of life for people living with dementia and their care partners… Zinnia’s content channels feature familiar faces, subjects, and sounds to help people feel engaged and connected... beautiful, immersive videos on familiar and well-loved topics are crafted to be meaningful.” Nature, Places, Nostalgia, Interests, Conversation Starters, Care Messages, Activities. Start with a free trial, then can subscribe if desired. Learn More IN THERE OUT HERE: ART MAKING SPACE TO LIVE WELL WITH DEMENTIA UBC multidisciplinary & colleagues abroad "Showcases collaborative art made by a warm, inter-connected and supported community. Comprising people living with dementia and their care partners, academic researchers, and art workshop facilitators alike, this community has joined together, engaging with multi-media art projects, and cultivating insightful discussions." Artwork, film, gallery, survey, & much more. Learn More CAFÉ CONNECT: VIRTUAL MEMORY CAFÉ DIRECTORY " Find information about Virtual Memory Cafes that you can access with a computer or by phone...from the comfort and safety of your own home." Scroll down to check calendar of offerings - most are in English, some in Spanish, and a few in French and Portuguese. Learn More Return to Top Research RESEARCH RESEARCH-BASED EDUCATION & SUPPORT NATIONAL COLLABORATING CENTRE FOR INDIGENOUS HEALTH “Cultural safety and Indigenous-specific anti-racism tools and resources…to support First Nations, Inuit, and Métis public health renewal and health equity through … evidence-based resources, multi-media products, and knowledge translation services…hosted by the University of Northern BC.” Learn more INDIGENOUS COGNITION & AGING AWARENESS RESEARCH EXCHANGE (I-CAARE) “Goal is to enhance knowledge of how Indigenous peoples understand and experience dementia and the impact of dementia on Indigenous peoples and communities.” Culturally Safe Care and Factsheets , Cultural Understandings , Practice Tools , Technology for Aging , International Strategies for Diagnosis Learn More P.I.E.C.E.S. ™ LEARNING & DEVELOPMENT MODEL “P.I.E.C.E.S.™ is a holistic, person and care partner-directed model which enhances capacity at the individual, Team, organization and system levels to support the care of the older individual.” ​ P.I.E.C.E.S.™ Cornerstones + P.I.E.C.E.S.™ Enablers = Enhanced Person & Care Partner Engagement AND Enhanced Organizational & System Capacity Learn More WHAT TYPE OF TREATMENTS REDUCE DEPRESSION SYMPTOMS IN PEOPLE WITH DEMENTIA? A SYSTEMIC REVIEW McMaster Optimal Aging Portal, BMJ 2021 “In people with dementia and symptoms of depression, some nondrug interventions reduce depression symptoms more than usual care . Nondrug interventions were as good as, or better than, drugs…brief descriptions of nondrug interventions.” Learn More Return to Top Media MEDIA ONLINE WEBINARS, TED TALKS, YOUTUBE VIDEOS DEMENTIA DIALOGUE PODCASTS AND RESOURCES Centre for Education and Research on Aging and Health (CERAH), Lakehead University “Listeners who have dementia, care partners, and others gain insight and strengthen their adaptive skills help the broader community understand what it means to live with dementia and how they can support people.” Also special series for spirituality, arts, women, early onset dementia and new podcasts being added. French & English. Website here HEALTHY AGING CORE: COLLABORATIVE ONLINE RESOURCES & EDUCATION Free signup for CORE access, then search for videos, webinars, documents with search term 'dementia.' Many recordings of past webinars and links to upcoming ones. Learn More CAREBLAZERS A geropsychologist, Dr. Natali Edmonds, invites you to watch free videos weekly and offers a subscription to a collection of Mini-booster videos designed to reduce caregiver stress. “My goal was to reach as many Careblazers as possible and let them know they aren’t alone and there is help...help families get trustworthy and helpful information about common dementia struggles.” Free Caregiver Survival Guide and free YouTube videos on a wide range of topics. Learn More TED TALKS Some of the latest science about how the brain works and a search for the word 'dementia' brings up a wide variety of related issues. Learn More Back to Resources - Dementia Ventures

RESOURCES The Hub encourages everyone to know about Help Lines that provide credible information to callers with questions and concerns. Help Lines DEMENTIA VENTURES RESOURCES We also provide selected resources here for Dementia Ventures , since that is the Hub's focus in 2020-2023. Understanding & living with dementia Guides for inclusive Programming Tools for Engagement Research Reports & Data

PROGRAM LEADERS YOU can help create a sense of belonging for people with dementia deliver diverse experiences facilitate expression of feelings stimulate the senses and emotions It is so important to remain socially, mentally and physically active when experiencing cognitive decline. Program leaders are essential partners in offering meaningful activities that are fun and inclusive, so community members living with dementia and their care partners look forward to participating. This website's Resources will help you understand how to engage and adapt your leadership skills so your language and approaches resonate and encourage everyone to remain active and involved in your programs. ​ Hub Partners would like to hear from you! Visit the Current Hub Partner Projects page to see which project is most attractive and contact the Partner sponsoring it

NIDUS PERSONAL PLANNING RESOURCE CENTRE AND REGISTRY Nidus.ca Nidus is a non-profit that offers a variety of online presentations (webinars), information and documents about legal planning under BC legislation. These cover documents for while you are alive and for after death – e.g.Advance Directives, Disability Trusts, Representation Agreements, Enduring Powers of Attorney, Wills. It explains how to use the Nidus Registry service as a document repository. There are a variety of services offered as funding allows. 2024 Monthly webinar series here NEWS AGING IN UNCERTAINTY United Way BC & Coalition of BC Non-Profit Community-based Seniors Organizations “Report…spotlights the critical issue of seniors struggling to secure affordable housing in the face of soaring living costs, stagnant government retirement incomes, and a shortage of affordable housing…BC's seniors experience an alarmingly high rate of financial hardship, with 15.2% of seniors considered low income. Shockingly, in 2020, one in four seniors in BC had after-tax incomes below $21,800—almost $10,000 below the minimum wage.” Report here GOOD NEIGHBOUR BLOCK CONNECTOR Kitsilano Community Action Network (KitsCAN) Good Neighbour Kitsilano is a grassroots, volunteer-run initiative aimed strengthening neighbourly connections and inspiring community action . In 2023, the focus was on emergency preparedness with Grab-and-Go-Bag workshops and participation in an Emergency Preparedness & Response pilot project. That’s because neighbours are your first responders in most emergency situations! Good Neighbour Block Connectors take action to identify gifts, assets, skills and knowledge among their neighbours . Fostering those social connections can make a difference in your life and the lives of residents living near you. KitsCAN is recruiting Block Connectors who will be supported in their outreach efforts. Join us and share creative ways to get started or build on what you already do. Time: Wednesday, March 13, 2024 5:30 - 7:30pm Location: Kitsilano Neighbourhood House, 2305 West 7th Ave. , Vancouver For more information: goodneighbourkits@gmail.com or Facebook here PATIENT VOICES NETWORK Health Quality BC “Health care organizations value patient partner input to improve quality of care… From committees to quality improvement projects, and everything in between, engagements are led by health care partners and promoted by PVN.” Opportunity postings come and go but can be filtered by Connection Method (virtual, in-person, hybrid), Length of Commitment (short- and/or long-term, one-time), Open to (affiliated with a BC Health Authority). Listings here HOUSING TOOLKIT J ewish Family Services “This toolkit is a guide to help you better understand subsidized housing system in Lower Mainland and familiarize you with other options that may be available through the community resources…a step-by-step guide to help you search for independent housing and navigate the housing system independently . View and download the Toolkit here BUS RENTALS ASK Friendship Society “9 or 18 passenger buses with experienced driver for 4 – 7 hour rental options. Senior-focused service that is wheelchair accessible, low-step entry, grab rails, 3-point seatbelts but accommodates all ages, children to adults. See website here for full details, pricing and photos. Contact to book: 604-263-7333 or caring@askcentre.ca ​ EVERY VOICE COUNTS Office of the Seniors Advocate BC “Long-Term Care Resident and Visitor Survey Results 2023 …that covered 297 publicly subsidized care facilities in B.C. and received responses from over 10,000 residents and almost 8,000 family members and close friends…Survey results show there has been little improvement in areas such as frequency of bathing, help at mealtimes, meaningful activities, engagement with staff and other residents, and the overall ratings of quality remain relatively unchanged. Despite these shortcomings, residents continue to give high marks to long-term care home staff for their skill, compassion and ability to treat residents with respect.” Highlights and links to the full report, presentation slides, videos, and more here ​ BOOK A PHARMACIST BC Ministry of Health On June 1, 2023, pharmacists’ scope of practice was expanded to allow them to prescribe for 21 minor ailments and contraceptives…Book an appointment to see a pharmacist through a new provincial online booking system … Search for available appointment times at nearby pharmacies or make an appointment by calling or visiting a pharmacy . Walk-in service without an appointment is also available at some pharmacies. Online booking at See a Pharmacist here BC BRAIN WELLNESS PROGRAMS BC Brain Wellness Centre, University of British Columbia "BC Brain Wellness Program...provides learning opportunities for medical professionals and the general public on brain wellness practices. Wide range of free programs …from interdisciplinary collaborations with UBC's Physiotherapy, Kinesiology, Occupational Therapy, Neurology, Psychiatry, Neurosciences, Sports Medicine, Nutrition, Psychology and the School of Music as well as several community partners." Some programs are in-person, others virtual. Winter 2024 registration opens January 8th Programs run from January 15th - April 12th Explore class options here LEGAL RESOURCES FOR CAREGIVERS Family Caregivers of BC and Nidus BC Estate planning takes care of your assets when you die - a Will and Enduring Power of Attorney, but they do not cover health or personal care. “If you do not want government (Public Guardian and Trustee of BC) to be involved in your personal and private affairs , you will want to make arrangements in case you need help managing your affairs due to illness, injury, or disability while you are still alive. “Choose those you trust to advocate for you and carry out your wishes, if you need help speaking up for yourself” and prepare a Representation Agreement (RA) and Advance Directive (AD). Read more about RA and AD here and here Help Age Canada & CORE Healthy Aging On Aging Canadian Conversations presents Dr. Samir Sinha, University of Toronto Health Network and expert in the care of older adults, spoke about meeting individual needs and finding the right place to age with supports that maintain one’s quality of life. Recording of a half-hour conversation with Dr. Sinha in March 2023 and links to his other presentations about practical technologies to help with aging place. Recording here FREE AND LOW-COST COMMUNITY FOOD RESOURCES ON WESTSIDE Westside Food Collaborative There are low-cost and subsidized meals and marketplaces and free food pantries and community fridges throughout the Westside Information here Information about similar services that are available elsewhere in the City of Vancouver here AGING IN THE RIGHT PLACE CELEBRATING SUCCESS AND MOVING FORWARD University of British Columbia and Lakehead University A 10-minute video captures the voices of people experiencing dementia and those facilitating projects involved with Building Capacity for Meaningful Participation by People Living With Dementia. These grassroots organizations undertook a variety of initiatives to create more inclusive communities. The Building Capacity project, funded by the Public Health Agency of Canada, celebrates its activities and anticipates moving forward with new initiatives to inspire others. Video Here BC COMMUNITY SERVICE DIRECTORY PathwaysBC Directory of “publicly available services and programs in participating communities.” The Directory is a joint initiative between Doctors of BC’s General Practitioner Services Committee and the BC government with a support team that provides the technical infrastructure. It is free, searchable by the public, and has many filter options to narrow down keyword searches Website here Heading 2 WELLNESS TOGETHER CANADA W ellness Together Canada is a “collaborative project…to provide high-quality resources for everybody and supported by a wide network of organizations …funded by the Government of Canada. It was created in response to a rise in mental health and substance use concerns and…services range from basic wellness information, to one-on-one sessions with a counsellor, to community support. Wellness Together Canada is designed to be used on demand .” Explore resources at the website here . If you would like to speak with a Program Navigator , call 1-866-585-0445. CANADIAN INSTITUTE FOR SOCIAL PRESCRIBING (CISP) Intersectoral collaboration project anchored by the Canadian Red Cross “CISP is a new national hub to link people and share practices that connect people to community-based supports and services that can help improve their health and well-being … part of a global movement of people bringing community capacity and healthcare services closer together by directly addressing th e social determinants of health , from loneliness and social isolation to racism and ageism to income and housing and much more.” Newsletter, events, reports, resources, etc. Website resources here SENIORS ON THE MOVE Better Environmentally Sound Transportation (BEST) “BEST and other community partners assist seniors in finding alternative transportation options that are environmentally friendly, such as car pools and community shuttle buses …and with driving cessation …to increase transportation options for older adults in BC so they can continue to lead a full life after they stop driving.” Explore the website here . Their video, R.O.V.I.N.G. (Raising Our Voices in Support of Non-Ageist Ways of Getting Around) is the centre of a broad communications campaign and province-wide dialogue on seniors’ transportation issues. Are you or your organization interested in hosting a community dialogue and R.O.V.I.N.G. screening? Materials and support here INTERGEN NS North Shore Community Resources Intergenerational Program Directory and Resource Hub that “helps connect different generations on the North Shore while providing resources to help community partners establish intergenerational programming… These projects have been launched in order to actively facilitate a North Shore community that is connected, inclusive, and age-friendly.” Information here ​ ACTIVITIES TO KEEP YOUR MIND & BODY HEALTHY McMaster Optimal Aging Portal “Many outdoor activities help older adults stay physically and mentally fit. ..Physical benefits include improved strength, better endurance and greater flexibility . Exercise is not only good for the body but your mind too! It can reduce stress, improve self-esteem, and reduce depressive symptoms.” Ideas here AGEING IN THE RIGHT PLACE: SUPPORTING OLDER CANADIANS TO LIVE WHERE THEY WANT National Institute on Ageing report “This report aims to present a practical definition and framework to understand what ageing in the right place (AIRP) is and what is required to make it work… highlights existing best practices and oppor tunities that can reduce unnecessary LTC home admissions and better support the implementation of successful AIRP policies and programs across Canada and beyond.” Report and AIRP Programs & Services here FLIPPING STIGMA ON ITS EAR TOOLKIT & GUIDE Canadian Institutes of Health Research “The discrimination caused by stigma that accompanies a diagnosis of dementia needs to be ‘flipped on its ear’! The purpose of this toolkit is to recognize and respond to this stigma and discrimination. It has been designed by people with dementia to help others – including other people living with dementia, the people who support them, and those who do research – to address the challenges of stigma and discrimination.” Video clips demonstrate interactions and stimulate discussions. Explore the website here . Sign up for Newsletter here The Action Group's Guide for moving forward here MUSIC AS A CAREGIVING TOOL Family Caregivers of BC The latest in a series of 15 Caregiver Out Loud podcasts: "Hear how music enhances the care experience...No matter what your musical background is, music used intentionally can be beneficial to improve health and well-being...not only for the care recipient, but for you as well, as a caregiver...hear how music enhances the care experience." Listen here or subscribe to the series where you get your podcasts COVID IN THE HOUSE OF OLD Curator Megan J. Davies collaborated with on an installation project telling stories of those in long-term care during the pandemic: “how we failed our vulnerable elders…the sheer numbers of people who were lost…petition to transform eldercare for quality of life.” The website has the installation’s stories, pictures, audio plus educational resources (artefacts, podcasts, exhibit texts) This is a traveling exhibi t now in New Westminster, then Squamish, and bookable for other sites. Website here CULTURAL PROGRAMS Vancouver Aboriginal Health Society “Our Circle is Strong is a vital cultural pathway for individuals, families, and communities to keep spirits, hearts, and minds healthy and strong. The program aims to improve participants’ holistic wellness and develop positive individual and collective identities through a connection to Indigenous culture… The Elders and Knowledge Keepers in this program provide support and guidance.” Wellness means there is a broad range of one-on-one and group services here and a variety of cultural drop-in workshops here . and website here. BC SENIORS: FALLING FURTHER BEHIND Office of the Seniors Advocate, British Columbia “The report highlights the impact of rising costs on B.C. seniors who depend on government pensions and ranks B.C…The report includes the results of a province wide survey of low-income seniors and a provincewide consultation with over 80 community agencies who work with seniors.” Read the report here under 2022-2023 LIVING MY CULTURE Canadian Virtual Hospice “Quality palliative care helps you honour your culture, spirituality and traditions… people from various cultures share their stories and wisdom about living with serious illness, end of life and grief to support others.” Also videos and insights from representatives of eight global cultures . Indigenous cultural safety training : Advanced illness, palliative care and grief and “Coming full circle: Planning for Your Care a booklet to ensure Indigenous Peoples’ choices for their future healthcare are known and respected.” Information here SHINE Seniors Housing Information and Navigation Ease The SHINE program, funded by the Ministry of Mental Health and Addictions and led by the Seniors Services Society of BC, is a province-wide initiative designed to facilitate timely access to and navigation of appropriate housing services and support for seniors. Seniors Housing Navigators are located within each partner organization…Community Connectors reduce isolation and increase social and service connections for seniors through referrals to local, community-based programs and education… A Seniors Mental Health & Wellness Provincial Resource is an online directory and Provincial Seniors Housing Directory aimed to increase the accessibility of senior-specific housing ((e.g. Temporary Housing Program ) and mental health information…Capacity Building contributing to research projects, developing new initiatives, building a network of service providers, advocating for positive change, and building capacity in the sector.” See SHINE here for services from Partner organizations in your area ​ CAREGIVER LEARNING CENTRE Family Caregivers of BC Caregiver resources in formats to read (articles, tips, tools, flip books), watch (webinars and videos), listen (podcasts) or take a class or join a support group (free, online). Browse here GLOBAL CAMPAIGN TO COMBAT AGEISM World Health Organization (WHO) “This campaign aims to tackle ageism by changing how we all think, feel and act towards age and ageing…A toolkit to learn about ageism, initiate your own conversations about this important topic in your community, organize events to raise awareness, and spread the word through social media to create #AWorld4AllAges. Tookit and related information here IF NOT YOU, WHO? Advance Care Planning Canada “Planning for your future healthcare needs is importan t…Do you know what would happen if you couldn’t speak for yourself? Who would you trust to makd those healthcare decisions for you?... The best time to think about this is now when you can speak for yourself.” This website helps you put advance care planning into action with scenarios and resources. Start thinking about it by clicking here HOP ON BOARD! Active Aging Society, TransLink, Choose to Move Learn about multi-modal transportation options available to seniors and newcomers in an engaging webinar. Hop on Board! is an up-to-date review of various ways it can be easy to use public transit in Metro Vancouver. You might qualify for a HandyCard to get out and about. If so, care partners are free ! Webinar and transcript are available here MOVE AND CONNECT WEBINAR SERIES Active Aging Society “Features wide-ranging health promotion and healthy lifestyle topics...series aims to connect older adults to information and services to support their physical, social, and mental health…learn strategies and set goals.” Example: A Prescription for Nature: Connect to Better Health Through Nature in collaboration with BC Parks Foundation. Ask your healthcare provider for a ParX Prescription – hand them this flyer Series of recordings here

COLLABORATION VALUES SENIORS LED Dirigés par les seniors: L e Hub est dirigé par des personnes âgées afin de mieux répondre aux besoins des personnes âgées. Il favorise un processus de vieillissement en bonne santé, reconnaissant que plusieurs générations et cohortes ont besoin de différentes activités et soutiens. Les aînés fournissent des conseils sur l'amélioration de l'accessibilité des programmes pour aînés et la prise en compte de la diversité des intérêts des aînés. COMMUNITY FOCUSED The overarching intention of the collaboration among Partner Organizations is to maximize benefits for the community and to leverage resources effectively, for example by seeking opportunities for funding support and innovative collaboration. The Hub relies on community engagement to address the needs and interests of diverse facets of the community. DIGNITY AND RESPECT Dirigés par les seniors: L e Hub est dirigé par des personnes âgées afin de mieux répondre aux besoins des personnes âgées. Il favorise un processus de vieillissement en bonne santé, reconnaissant que plusieurs générations et cohortes ont besoin de différentes activités et soutiens. Les aînés fournissent des conseils sur l'amélioration de l'accessibilité des programmes pour aînés et la prise en compte de la diversité des intérêts des aînés. BELONGING The Hub strives to create a sense of belonging and inclusion and provide opportunities to be connected and engaged in the community. OPENNESS Ouverture: Les Organisations Partenaires Hub opèrent dans un esprit de respect mutuel et sont claires et ouvertes sur leurs intentions. Ils évoquent tous les problèmes qui surviennent au cours du travail du Hub afin qu'ils puissent être traités par le groupe. BECOME A PARTNER If you are a public, non-profit, or faith-based organization that serves seniors on Vancouver’s Westside, we would like to collaborate with you! ​ WHAT VALUES DOES THE WESTSIDE SENIORS HUB OFFER? ​ Help seniors know what programs and services Westside organizations offer to keep them socially engaged, active and well-served Enable the sharing of information and resources among Hub Partner Organizations and other community entities Better meet the needs of Westside seniors by sharing knowledge between seniors and Hub Partner Organizations Increase community awareness of seniors' issues and strengthen advocacy on behalf of seniors ​ HOW CAN PARTNERING IN THE WESTSIDE SENIORS HUB BENEFIT MY ORGANIZATION? ​ Enhance community awareness of your seniors’ programs and increase participation Learn from experiences and insights of other seniors' service providers Share ideas and solutions to improve seniors’ programs and services Amplify the voice of Westside seniors' service providers through the collective power of working together WHAT ARE THE ROLES AND RESPONSIBILITIES OF A HUB PARTNER ORGANIZATION? ​ Actively support the goals and operation of the Westside Seniors Hub by attending quarterly meetings, sitting on committees where possible, and providing advice and expertise to Council and Committees when requested Submit program and event information for profiling in Hub communications (website, HubBytes newsletter) Share ideas, successes, and challenges at quarterly Partner meetings Share information from Partner meetings within your organization Promote the network of Partner Organizations and make referrals where appropriate Partners meet quarterly and communicate via email between meetings. Partners are encouraged to join committees relevant to their work and offer space, resources and guidance to help the Council and volunteers in their efforts. Contact us to become a partner Hub brochure here PARTNER ORGANIZATIONS A growing network of Partner Organizations that serve seniors on the Westside have an interest in collaborating to support seniors in their community. They meet quarterly to share information about resources and assets, identify emerging issues, and collaborate on building a range of integrated services for seniors. They work with the Hub Council, serve on committees to act on identified issues, and represent the Hub to the public and various constituencies. Devenir un partenaire Partenaires actuels Collaboration values

NEWSLETTER HubBytes is t he Westside Seniors Hub's newsletter. It profiles key initiatives of the Hub's Partner Organizations and flags current issues, events and innovations that may be of interest to seniors. After a pandemic-induced hiatus of two years, we aim to publish HubBytes quarterly starting with Winter 2021-2022 . To view copies of HubBytes newsletters or subscribe, please click here

Dementia Ventures… Renforcement des capacités Dementia Ventures crée des occasions communautaires significatives pour les personnes atteintes de démence de rester actives et engagées. Veuillez participer à la création d'une communauté plus inclusive et à l' augmentation de la citoyenneté sociale pour les personnes atteintes de démence . Dementia Ventures renforce la capacité de la communauté à inclure les personnes atteintes de démence dans des activités significatives! Les organisations partenaires du Westside Seniors Hub travaillent à adapter les programmes actuels et à créer de nouveaux programmes inclusifs et permettant aux personnes atteintes de démence de socialiser en fonction de leurs intérêts. Vivre avec la démence implique de poursuivre ses passions! Les communautés qui offrent diverses possibilités démontrent que les gens peuvent rester des contributeurs dynamiques à la vie communautaire bien au-delà d'un diagnostic de démence. Envie de vous impliquer? Si oui, êtes-vous? éprouver des difficultés cognitives un partenaire de soins un chef de programme un professionnel travaillant avec des seniors un bénévole motivé Vous pouvez aider les organisations partenaires du Hub à développer des activités artistiques , sociales , de fitness et de bénévolat attrayantes et durables. Les partenaires du Hub veulent que les personnes atteintes de démence et leurs partenaires de soins expriment leurs besoins et leurs désirs. Les partenaires ont également besoin de l'aide de responsables de programme, de bénévoles motivés et de professionnels travaillant avec des personnes âgées. S'il vous plaît Impliquez-vous ! L a vue d'ensemble… Action collective des aînés et de leurs partenaires de soins De 2019 à 2023, le Westside Seniors Hub se concentre sur Démence en collaboration avec le Université de la Colombie-Britannique et Université Lakehead à Thunder Bay, Ontario. L'Agence de la santé publique du Canada finance le projet-cadre intitulé Renforcer les capacités pour une participation significative des personnes atteintes de démence . Il s'agit de l'un des premiers projets de recherche communautaires financés dans le cadre d'un plan global de l'Agence de 2019: Une stratégie sur la démence pour le Canada . Dementia Ventures is building community capacity to include people living with dementia and their care partners in meaningful activities! When communities provide diverse opportunities for these people to engage, they can remain vibrant contributors to community life well beyond a dementia diagnosis. Living with dementia shall include pursuing one’s passions! ​Dementia Ventures invites you to get involved in creating a more inclusive community and increasing social citizenship for people living with dementia. ​ Join us in adapting current programs or creating new ones that are inclusive and enable people living with dementia to socialize according to their interests. Westside Seniors Hub Partner Organizations have a variety of opportunities underway to be more inclusive. Join any of our current projects described here . There are opportunities for anyone to help make communities more dementia-friendly. ​ Get Involved Current Hub Partners Projects SoundBytes Series Fireweed Club News & Events Resources ​ WE NEED DIVERSE PARTNERS TO HELP BUILD CAPACITY FOR GREATER INCLUSION! Everyone's skills and experiences can make a difference. Perhaps you are experiencing cognitive difficulties a care partner a program leader a professional working with seniors a motivated volunteer YOU can assist Hub Partner Organizations develop appealing and sustainable arts , social , fitness and volunteer activities. ​ Hub Partners want people living with dementia and their care partners to express their needs and desires. Partners also need the assistance of program leaders, motivated volunteers, and professionals working with seniors. THE BIGGER PICTURE... COLLECTIVE ACTION BY ELDERS AND THEIR CARE PARTNERS From 2019-2023, the Westside Seniors Hub is focusing on Dementia Ventures in collaboration with the University of British Columbia and Lakehead University in Thunder Bay, Ontario. Find out more about the UBC and Lakehead University research team members here . The Public Health Agency of Canada is funding the umbrella project called Building Capacity for Meaningful Participation by People Living With Dementia . It is one of the first community-based research projects funded under a 2019 Agency comprehensive plan: A Dementia Strategy for Canada .

We'd love to know what you think! Name Your email address What two or three words come to mind when viewing this image? How does this image impact the way you think about Dementia? Would you like to know more about Dementia? Yes No Not sure SUBMIT

Events - Return to top SOUND BYTES SERIES Return to top Hub Community Action That Builds Capacity The Dementia Ventures project empowers Hub Partners to build out inclusive community programming for all and adapt to include people living with dementia. They and their care partners want to remain socially engaged in meaningful activities. A collaboration with UBC’s Dr. Alison Phinney and her Building Capacity team offers financial, strategic and logistical resources so programs can welcome and support those with dementia and their care partners. We celebrated midway in this initiative with a series of vibrant online community dialogues. The theme was: “What it means to be an accepting and inclusive community.” SoundBytes wants to share wisdom from those dialogues. Here are our first nuggets. There will be many more! PAVING THE WAY FOR OTHERS WITH DEMENTIA ... BC-based Lynn Jackson is a retired nurse and highly active advocate for people living with dementia. She's a member of several action groups and continues to blaze a trail for others to live well and feel empowered living with dementia. Watch Full Event HERE A PERSON-CENTERED APPROACH TO DEMENTIA ... In a recent Dementia Dialogue podcast interview, BC artist and advocate Granville Johnson reminds us how crucial it is that people with dementia be involved in planning and decision making for initiatives that affect their lives. "Inclusion creates understanding, facilitates empathy, and shares love." For more on the importance of including and respecting people with dementia, please visit buildingcapacityproject.com and flippingstigma.com Watch Full Event HERE STRENGTH IN NUMBERS ... This excerpt from a new episode of Dementia Dialogue features UBC's Dr. Alison Phinney on overcoming barriers to community engagement for people living with dementia. Dr. Phinney discusses what she's learned through her extensive research, and how important it is to have a team. Joining her in discussion on the episode is Community Research Coordinator Dr. Andrea Monteiro and BC-based Lynn Jackson, a dementia advocate and retired nurse living with dementia who explains what's been most effective for her. Watch Full Event HERE THE BEAUTY OF INCLUSION ... Veteran dementia advocate and Thunder Bay resident Bill Heibein expresses his deep appreciation for the inclusive and warm nature of his local Dementia Cafe and its refreshing lack of labels. "No one asks who's who; they just welcome you in the door." Sounds pretty lovely to us! Watch Full Event HERE THE POWER IN THE WORDS WE USE ... When John's doctor made a joke out of his dementia, he was deeply hurt. It's these kinds of microaggressions that create the biggest barriers for people with dementia to live well. Words like these that silence people who really need to speak and share. Help us empower people with lived experience to know they're entitled to live their best life too. Watch Full Event HERE PERSPECTIVE IS EVERYTHING ... BC-based artist and advocate Granville Johnson spoke out about fear and the power of our perspective on Dementia Dialogue's most recent podcast episode, addressing the ways we can choose to gain some sense of control and joy back into our lives even in the face of new challenges. Watch Full Event HERE WHAT HOLDS US BACK The biggest challenge to community support for people living with dementia. In the most recent podcast episode of Dementia Dialogue, Dr. Alison Phinney discusses the stigma attached to dementia diagnoses and how that impacts community support efforts. She speaks with host Lisa Loiselle and fellow podcast guest Granville Johnson, who lives with dementia himself, about the important balance to be struck between training and education on one hand, and engaging with people with lived experience on the other. Watch Full Event HERE TURNING TOWARDS THE PERSON WITH DEMENTIA A care partners perspective on what helps. Karen Rolston’s mother Louise started getting inklings something was a little “off” back in 2011. At the time, the Rolstons were already in the process of creating a laneway house on their property for her, so they could live close together. The timing worked out well. Louise lived there for seven years beside her daughter Karen, Karen’s husband, and their daughter. Those years were, “a beautiful opportunity for us to just wrap mom with more support and care while she was able to live in her own space,”Karen said. ​ When Karen thinks about the journey she has been on with her mom, and the reactions from people when it comes to dementia, the word that comes to mind is fear. “People find out someone has dementia, and they think, ‘Am I going to receive this diagnosis too?’ ‘Is someone I love going to get dementia?’” Rolston said. Fear seeps in and too often, people pull away. ​ “People often don’t know what to say or do, so they turn away from those with dementia instead of turning toward them with love,”Rolston said. Rolston is extremely grateful for community supports. Her mom really enjoyed the Alzheimer Society’s Minds in Motion program, the Alzheimer’s Café and the Helena choir she joined. “These community groups are where we felt really held,” she said. “It’s such a painful journey and there is still so much we can do.” ​ In this Soundbyte, Rolston offers her thoughts on how to really tune into a person’s needs and meet them where they are, rather than seeing their responses as resistance or defiance. Loving and showing up for someone with dementia is about cherishing the now, embracing their world, and accepting what is. Watch Full Event HERE ANDRÉ PICARD ON THE MEDIA'S ROLE IN STAMPING OUT STIGMA ... Esteemed Globe and Mail Columnist André Picard wrote Neglected No More: The Urgent Need to Improve the Lives of Canada’s Elders in the Wake of a Pandemic in 2021, a book that discusses what needs to change to shift the culture of long-term care across our country. “Picard reveals the full extent of the crisis in eldercare and offers an urgently needed prescription to fix a broken system and ensure long-term care homes are not warehouses of isolation and neglect” Penguin Random House states on their site. Care home COVID outbreaks seemed to be exploding in every region of the country at the time, drawing attention to the deplorable working conditions they had for employees, the resulting neglect residents experienced, and the total lack of support for the institutions in general. In this storyboard, Picard says media needs to highlight not just worst-case scenarios meant to shock and awe, but stories about people living quite well for a long time with dementia. Seeing more people with dementia in our day-to-day activities—including in the news— would normalize that experience as a way of reducing stigma. Lastly, he emphasized the importance of having people with dementia sit on boards and committees on which they get a real vote in the outcomes of important decisions. Watch Full Event HERE SUZUKI ELDERS On the value of art in supporting the dementia journey... Rob Dramer and Lilllian Ireland are self-identified elders who work with the Suzuki foundation mentoring and supporting other elders and younger generations in dialogue and action on environmental issues. They're also traveling performers who offer a multi-sensory show featuring songs they've written about biodiversity, interspersed with some familiar tunes to help audiences tap into earlier memories. Music elicits powerful connections, and they invite audience members to join in the fun alongside them and their collection of beautiful local animal puppets. Watch Full Event HERE POETRY On the value of art in supporting the dementia journey... Myrna Norman is an author, artist, and dementia advocate based in Maple Ridge. In 2009, when Norman was diagnosed with Frontal Temporal Dementia and given eight years to live, she went home ready to die. But after grieving this news for a couple of weeks, Norman decided to do what she’s best at: advocating for change. She became heavily involved in initiatives that let others in her situation know they weren’t alone. Thirteen years later, Norman’s passion, generosity of spirit, and charisma have touched so many lives. Her book, “Dementia Strategies, Tips and Personal Stories,” has become an indispensable voice of validation and support. ​ Norman has participated in multi-year research studies, art-making groups and task forces including The Dementia Sisterhood, the Dementia Action Committee, Dementia Advocacy Canada, the Dementia Friendly Task Force, and now the Building Capacity Project to name just a few. She’s also collaborating with researchers and designers at Emily Carr University’s Health Design Lab to develop a series of workbooks geared at supporting researchers to engage in collaborative work with people with lived experience. And to all these roles, she brings her signature energy, compassion, and love for showing people their strength. Watch Full Event HERE BEACON *Shining Light on Dementia An Initiative to build an inclusive congregation at Pacific Spirit United Church. A dedicated group of congregation members at Pacific Spirit United Church worked together over the course of a year to create an incredible and insightful four-part series on dementia that you can access online.​ ​ They had noticed church members struggling with cognitive decline and family members worried about finding extra care, so they dove in to offer support. Their commitment to fostering a dementia friendly culture at their church has since inspired many other groups to take action too. ​ For more details go to www.pacificspiritc.com and click on "ministries". The series is under "Beacon *shinning light on dementia." Watch Full Event HERE LET'S TALK ABOUT DEMENTIA The Flipping Stigma Toolkit An Action Group of people living with dementia came together and developed a toolkit to start a conversation about stigma and discrimination in dementia. The Flipping Stigma Toolkit is a project where a group of people diagnosed with dementia partnered with a research team to develop an online toolkit. ​ This Action Group, funded by a research grant from the Canadian Institute of Health and Research, co-designed the toolkit to help people with dementia recognize and respond to stigma and discrimination -and to help others better understand ho to be supportive-. ​ The Goa? Flip that fear on its ear. ​ To learn more visit www.flippingstigma.com Watch Full Event HERE EMILY CARR UNIVERSITY'S HEALTH DESIGN LAB Emily Carr University's Health Design Lab employs participatory methods to lift up the perspectives of people with lived experience. Researchers and designers at Emily Carr University’s Health Design Lab use participatory design methods to catalyze, support and amplify initiatives addressing complex health challenges like dementia. “We use design methods to help engage people with dementia in initiatives that directly impact their lives,” said Lab Director Caylee Raber. The team’s current project is called Collaborate, Gather, Share—a workbook series co-designed by people with lived experience to help drive reflection around how they can be brought into research projects and how best to support those collaborations, recognizing people with dementia as experts. ​ Their recent video, “Perspectives,” paired design students with long-term care residents. They co-designed and co-wrote mini publications featuring residents’ stories. Students developed creative games and activities to help draw out residents’ stories that they then captured in zines and mini-books, some even embroidered on quilts. ​ Lastly, the team worked with Vancouver Coastal Health for four years on a project focused on shifting the culture of care in long-term facilities. All the Lab’s work focuses on how researchers and designers can use their skills and expertise to build upon work already being done—facilitating creative expression and self advocacy for people with dementia and getting those messages out to the world. Watch Full Event HERE REPRESENTATION MATTERS The power of seeing our experiences in the stories of others. Author, artist, and dementia advocate Myrna Norman runs a peer support group for others with dementia in her lower mainland community called the Purple Angels Memory Café. The group meets four times a month, and sometimes outdoors in summer when the weather is beautiful. Every second week, it’s the Army and Navy Club for a beer and live music. Members take turns bringing refreshments and treats and have fundraised up to $300 to put towards games and activities they can play together. The group is a wonderful way to connect with others, share similar experiences, and gain support and a powerful sense of belonging. The best part? Membership is free. “The gift [members] give to me is so much more than could ever be paid,” said Norman. ​ One new member who joined a couple of weeks ago turned to Myrna as he was leaving the Army and Navy Club and said, “Myrna, I feel different now. The music touched something inside of me.” ​ “I still get the shivers thinking about it,” Norman said of the comment. It’s revelations like this one that drew her to this work. ​ For more information or to check out the Purple Angels sometime, email Myrna Norman at: the.normans@shaw.ca Watch Full Event HERE THE POWER OF SUPPORT FROM OUR FAITH & CULTURE GROUPS Shared values and perspectives Reverend Deborah Liang has been a minister in the United Church of Canada for 37 years, the last four at Pacific Spirit Kerrisdale. She's seen how good communities gather around people in both their joys and troubles, contributing immensely to their quality of life. She also served as chaplain at a rural hospital and learned so much from nurses and program staff there about support, respect and care for people with dementia. Watch Full Event HERE RESPONDING TO DEMENTIA THROUGH A CROSS-CULTURAL LENS Shared values and perspectives One Vancouver man who has been advocating for the treatment and care of people with dementia ever since his dementia diagnosis over a decade ago, discusses how dementia is viewed through various cultural lenses. He explains how those lenses affect families' and individual's responses to diagnosis and decisions around treatment. Watch Full Event HERE TRUSTING OUR SENSE OF SELF ABOVE ALL ELSE Shared values and perspectives BC artist and dementia advocate Granville Johnson talks about the importance of trusting one's sense of self above all else when living with dementia. "The world might not know we're capable, but we can know it and live it and continue to pursue our dreams." Johnson lives in remote part of British Columbia where he's currently working on a novel. Watch Full Event HERE ON BRAVERY AND THE POWER OF SHARING OUR STORY Shared values and perspectives When Lester was first diagnosed with dementia, he and his wife and care partner Cindy found that some of their friends and family reacted with disbelief. Others weren't sure how to talk to him. Sharing the Flipping Stigma toolkit with their church and social communities gave the couple a chance to contextualize dementia for those who didn't know much about it. The toolkit allayed fears, provided reassurance, and ultimately resulted in Lester AND Cindy feeling they could open up more about his diagnosis, feel less shame, and share more of their journey with the people they cared about. The toolkit helped them feel much more deeply understood. Watch Full Event HERE HOW FOCUSING ON A PURPOSE BUILDS RESILIENCE Bill Heibein's journey with dementia. Bill Heibein continues to live on the farm he shared with his late wife Heather just outside Kakabeka Falls, Ontario. When he was diagnosed with dementia in 2000, doctors told him he'd have about five more years to live "usefully". Twenty-two years later, he has proven them wrong. In addition to caring for his horses, Bill volunteers as an advocate with the Northwest Dementia Working Group, helps run Dementia Cafes in the community, and is passionate about encouraging others with lived experience to get involved, advocate for themselves, and find purpose. Bill says it's that deep sense of purpose that's fuelled his ability to thrive with dementia for so long, and he's confident others can do the same. Watch Full Event HERE MAPPING DEMENTIA-FRIENDLY CULTURE A community works together to be more inclusive. When COVID-19 threatened to halt all their efforts in their tracks, Andrea Sara and her team found was to move online, gather virtually, solve problems, and dream big anyway. They worried for seniors who'd been hit particularly hard by increased isolation and wanted to ensure everyone in their community felt seen and supported. So, they went outside. They sought out "soothing spaces" where they could "feel safe socializing". That's how the Fireweed Club came to be. These days the DRA has its hand in so many wonderful initiatives, all which support inclusion, environmental awareness, and social engagement. Watch Full Event HERE ON THE VALUE OF INTERGENERATIONAL CONNECTION ... Dementia Educator and community advocate Helen Murphy has dedicated her career to making the North Shore and surrounding communities more dementia-friendly. She provides training for North Shore organizations, speaks to community groups, and volunteers in developing new programs and opportunities for people with dementia to live better lives in a community that is "wise, inclusive and socially integrated". Watch Full Event HERE THE NEED FOR PEOPLE WITH DEMENTIA IN ADVOCACY ROLES ... The Building Capacity Project team in Thunder Bay, Ontario partners with the Northwest Dementia Working Group on a number of fantastic community initiatives. The team is very grateful to the NWDWG members who have volunteered to help run some of their Dementia Cafes over the years, for instance, as these cafes are a great opportunity for people in the community to witness for themselves how important representation is, how much capacity there is among people with lived experience, and to be a apart of breaking down stigma. . CARE PARTNERS EMPOWERING PEOPLE WITH DEMENTIA ... Lynn Jackson is an action group member with lived experience who played a key role in developing the Flipping Stigma Toolkit, a new online resource helping educate caregivers, people with lived experience, researchers, and the public at large about how to respond to stigma around dementia. Jackson talks about how important it is for care partners to empower people with dementia to stay engaged and active. Fostering autonomy while supporting someone with dementia works to maintain their sense of personhood. Treating them like they're sick makes them feel that way. Watch Full Event HERE AMPLIFYING DIVERSE VOICES: THE VALUE OF LIVED EXPERIENCE ... Dr. Elaine Wiersma of the Centre for Education and Research on Aging and Health at Lakehead University talks about the need to amplify a wider cross section of voices when it comes to the lived experience of people with dementia. If our exposure of these experiences stays too narrow, we run the risk of silencing important wisdoms, staying uninformed as to the broad range of experiences, and keeping devastating stigmas alive. . ART AS A VEHICLE FOR CHANGE ... Art is a powerful vehicle for shifting perceptions and shaping culture. AND it's one way of letting your voice be heard when the words themselves might be too hard to say. Whether it's a poem, a collage, a painting, or a dance, the arts can be incredibly helpful and moving for people with dementia at all stages of their journey, and can help the public gain insight into their experience. .

Events - Return to top SOUND BYTES SERIES Return to top Hub Community Action That Builds Capacity The Dementia Ventures project empowers Hub Partners to build out inclusive community programming for all and adapt to include people living with dementia. They and their care partners want to remain socially engaged in meaningful activities. A collaboration with UBC’s Dr. Alison Phinney and her Building Capacity team offers financial, strategic and logistical resources so programs can welcome and support those with dementia and their care partners. We celebrated midway in this initiative with a series of vibrant online community dialogues. The theme was: “What it means to be an accepting and inclusive community.” SoundBytes wants to share wisdom from those dialogues. Here are our first nuggets. There will be many more! BC-based artist and advocate Granville Johnson spoke out about fear and the power of our perspective on Dementia Dialogue's most recent podcast episode, addressing the ways we can choose to gain some sense of control and joy back into our lives even in the face of new challenges. Watch Full Event HERE PERSPECTIVE IS EVERYTHING In the most recent podcast episode of Dementia Dialogue, Dr. Alison Phinney discusses the stigma attached to dementia diagnoses and how that impacts community support efforts. She speaks with host Lisa Loiselle and fellow podcast guest Granville Johnson, who lives with dementia himself, about the important balance to be struck between training and education on one hand, and engaging with people with lived experience on the other. The Biggest Challenge to Community Support for People Living with Dementia Watch Full Event HERE WHAT HOLDS US BACK Karen Rolston’s mother Louise started getting inklings something was a little “off” back in 2011. At the time, the Rolstons were already in the process of creating a laneway house on their property for her, so they could live close together. The timing worked out well. Louise lived there for seven years beside her daughter Karen, Karen’s husband, and their daughter. Those years were, “a beautiful opportunity for us to just wrap mom with more support and care while she was able to live in her own space,” Karen said. ​ When Karen thinks about the journey she has been on with her mom, and the reactions from people when it comes to dementia, the word that comes to mind is fear. “People find out someone has dementia, and they think, ‘Am I going to receive this diagnosis too?’ ‘Is someone I love going to get dementia?’” Rolston said. Fear seeps in and too often, people pull away. ​ “People often don’t know what to say or do, so they turn away from those with dementia instead of turning toward them with love,” Rolston said. Rolston is extremely grateful for community supports. Her mom really enjoyed the Alzheimer Society’s Minds in Motion program, the Alzheimer’s Café and the Helena choir she joined. “These community groups are where we felt really held,” she said. “It’s such a painful journey and there is still so much we can do.” ​ In this Soundbyte, Rolston offers her thoughts on how to really tune into a person’s needs and meet them where they are, rather than seeing their responses as resistance or defiance. Loving and showing up for someone with dementia is about cherishing the now, embracing their world, and accepting what is. ​ TURNING TOWARDS THE PERSON WITH DEMENTIA A care partners perspective on what helps. Watch Full Event HERE Esteemed Globe and Mail Columnist André Picard wrote Neglected No More: The Urgent Need to Improve the Lives of Canada’s Elders in the Wake of a Pandemic in 2021, a book that discusses what needs to change to shift the culture of long-term care across our country. “Picard reveals the full extent of the crisis in eldercare and offers an urgently needed prescription to fix a broken system and ensure long-term care homes are not warehouses of isolation and neglect” Penguin Random House states on their site. Care home COVID outbreaks seemed to be exploding in every region of the country at the time, drawing attention to the deplorable working conditions they had for employees, the resulting neglect residents experienced, and the total lack of support for the institutions in general. In this storyboard, Picard says media needs to highlight not just worst-case scenarios meant to shock and awe, but stories about people living quite well for a long time with dementia. Seeing more people with dementia in our day-to-day activities—including in the news— would normalize that experience as a way of reducing stigma. Lastly, he emphasized the importance of having people with dementia sit on boards and committees on which they get a real vote in the outcomes of important decisions. ANDRÉ PICARD ON THE MEDIA'S ROLE IN STAMPING OUT STIGMA Watch Full Event HERE Rob Dramer and Lilllian Ireland are self-identified elders who work with the Suzuki foundation mentoring and supporting other elders and younger generations in dialogue and action on environmental issues. They're also traveling performers who offer a multi-sensory show featuring songs they've written about biodiversity, interspersed with some familiar tunes to help audiences tap into earlier memories. Music elicits powerful connections, and they invite audience members to join in the fun alongside them and their collection of beautiful local animal puppets. On the value of art in supporting the dementia journey... Watch Full Event HERE SUZUKI ELDERS Myrna Norman is an author, artist, and dementia advocate based in Maple Ridge. In 2009, when Norman was diagnosed with Frontal Temporal Dementia and given eight years to live, she went home ready to die. But after grieving this news for a couple of weeks, Norman decided to do what she’s best at: advocating for change. She became heavily involved in initiatives that let others in her situation know they weren’t alone. Thirteen years later, Norman’s passion, generosity of spirit, and charisma have touched so many lives. Her book, “Dementia Strategies, Tips and Personal Stories,” has become an indispensable voice of validation and support. ​ Norman has participated in multi-year research studies, art-making groups and task forces including The Dementia Sisterhood, the Dementia Action Committee, Dementia Advocacy Canada, the Dementia Friendly Task Force, and now the Building Capacity Project to name just a few. She’s also collaborating with researchers and designers at Emily Carr University’s Health Design Lab to develop a series of workbooks geared at supporting researchers to engage in collaborative work with people with lived experience. And to all these roles, she brings her signature energy, compassion, and love for showing people their strength. On the value of art in supporting the dementia journey... Watch Full Event HERE POETRY A dedicated group of congregation members at Pacific Spirit United Church worked together over the course of a year to create an incredible and insightful four-part series on dementia that you can access online.​ ​ They had noticed church members struggling with cognitive decline and family members worried about finding extra care, so they dove in to offer support. Their commitment to fostering a dementia friendly culture at their church has since inspired many other groups to take action too. ​ For more details go to www.pacificspiritc.com and click on "ministries". The series is under "Beacon *shinning light on dementia." ​ BEACON *Shining Light on Dementia An Initiative to build an inclusive congregation at Pacific Spirit United Church. Summary HERE Watch Full Event HERE The Flipping Stigma Toolkit is a project where a group of people diagnosed with dementia partnered with a research team to develop an online toolkit. ​ This Action Group, funded by a research grant from the Canadian Institute of Health and Research, co-designed the toolkit to help people with dementia recognize and respond to stigma and discrimination -and to help others better understand ho to be supportive-. ​ The Goa? Flip that fear on its ear. ​ To learn more visit www.flippingstigma.com LET´S TALK ABOUT DEMENTIA THE FLIPPING STIGMA TOOLKIT An Action Group of people living with dementia came together and developed a toolkit to start a conversation about stigma and discrimination in dementia. Watch Full Event HERE Granville Johnson is an artist and teacher whose advocacy work is always led by his passion for lifting people up. In this piece, he talks about the ways his art and his lived experience inform each other. ​ He sees dementia as an opportunity for insight. “Dementia gives you a chance to express your inner self, the good, the bad and the ugly. And in that expression, there are opportunities to grow.” ​ He focuses on what he can do, rather than what he can’t. He believes the more society can get behind the idea of championing strengths rather than focusing on deficits, the stronger our community will become. Johnson lives in a remote part of Northern British Columbia and thrives in its natural beauty. ​ NEW PERSPECTIVES Shifting the conversation on dementia involves recognizing its gifts. Watch Full Event HERE Researchers and designers at Emily Carr University’s Health Design Lab use participatory design methods to catalyze, support and amplify initiatives addressing complex health challenges like dementia. “We use design methods to help engage people with dementia in initiatives that directly impact their lives,” said Lab Director Caylee Raber. The team’s current project is called Collaborate, Gather, Share—a workbook series co-designed by people with lived experience to help drive reflection around how they can be brought into research projects and how best to support those collaborations, recognizing people with dementia as experts. ​ Their recent video, “Perspectives,” paired design students with long-term care residents. They co-designed and co-wrote mini publications featuring residents’ stories. Students developed creative games and activities to help draw out residents’ stories that they then captured in zines and mini-books, some even embroidered on quilts. ​ Lastly, the team worked with Vancouver Coastal Health for four years on a project focused on shifting the culture of care in long-term facilities. All the Lab’s work focuses on how researchers and designers can use their skills and expertise to build upon work already being done—facilitating creative expression and self advocacy for people with dementia and getting those messages out to the world. ​ EMILY CARR UNIVERSITY´S HEALTH DESIGN LAB Emily Carr University's Health Design Lab employs participatory methods to lift up the perspectives of people with lived experience. Watch Full Event HERE Author, artist, and dementia advocate Myrna Norman runs a peer support group for others with dementia in her lower mainland community called the Purple Angels Memory Café. The group meets four times a month, and sometimes outdoors in summer when the weather is beautiful. Every second week, it’s the Army and Navy Club for a beer and live music. Members take turns bringing refreshments and treats and have fundraised up to $300 to put towards games and activities they can play together. The group is a wonderful way to connect with others, share similar experiences, and gain support and a powerful sense of belonging. The best part? Membership is free. “The gift [members] give to me is so much more than could ever be paid,” said Norman. ​ One new member who joined a couple of weeks ago turned to Myrna as he was leaving the Army and Navy Club and said, “Myrna, I feel different now. The music touched something inside of me.” ​ “I still get the shivers thinking about it,” Norman said of the comment. It’s revelations like this one that drew her to this work. ​ For more information or to check out the Purple Angels sometime, email Myrna Norman at: the.normans@shaw.ca REPRESENTATION MATTERS The power of seeing our experiences in the stories of others. Watch Full Event HERE Reverend Deborah Liang has been a minister in the United Church of Canada for 37 years, the last four at Pacific Spirit Kerrisdale. She's seen how good communities gather around people in both their joys and troubles, contributing immensely to their quality of life. She also served as chaplain at a rural hospital and learned so much from nurses and program staff there about support, respect and care for people with dementia. Shared values and perspectives. Watch Full Event HERE THE POWER OF SUPPORT FROM OUR FAITH & CULTURE GROUPS One Vancouver man who has been advocating for the treatment and care of people with dementia ever since his dementia diagnosis over a decade ago, discusses how dementia is viewed through various cultural lenses. He explains how those lenses affect families' and individual's responses to diagnosis and decisions around treatment. Watch Full Event HERE RESPONDING TO DEMENTIA THROUGH A CROSS-CULTURAL LENS BC artist and dementia advocate Granville Johnson talks about the importance of trusting one's sense of self above all else when living with dementia. "The world might not know we're capable, but we can know it and live it and continue to pursue our dreams." Johnson lives in remote part of British Columbia where he's currently working on a novel. Watch Full Event HERE TRUSTING OUR SENSE OF SELF ABOVE ALL ELSE When Lester was first diagnosed with dementia, he and his wife and care partner Cindy found that some of their friends and family reacted with disbelief. Others weren't sure how to talk to him. Sharing the Flipping Stigma toolkit with their church and social communities gave the couple a chance to contextualize dementia for those who didn't know much about it. The toolkit allayed fears, provided reassurance, and ultimately resulted in Lester AND Cindy feeling they could open up more about his diagnosis, feel less shame, and share more of their journey with the people they cared about. The toolkit helped them feel much more deeply understood. Watch Full Event HERE ON BRAVERY AND THE POWER OF SHARING OUR STORY Bill Heibein continues to live on the farm he shared with his late wife Heather just outside Kakabeka Falls, Ontario. When he was diagnosed with dementia in 2000, doctors told him he'd have about five more years to live "usefully". Twenty-two years later, he has proven them wrong. In addition to caring for his horses, Bill volunteers as an advocate with the Northwest Dementia Working Group, helps run Dementia Cafes in the community, and is passionate about encouraging others with lived experience to get involved, advocate for themselves, and find purpose. Bill says it's that deep sense of purpose that's fuelled his ability to thrive with dementia for so long, and he's confident others can do the same. Bill Heibein's Journey with Dementia Watch Full Event HERE HOW FOCUSING ON A PURPOSE BUILDS RESILIENCE When COVID-19 threatened to halt all their efforts in their tracks, Andrea Sara and her team found was to move online, gather virtually, solve problems, and dream big anyway. They worried for seniors who'd been hit particularly hard by increased isolation and wanted to ensure everyone in their community felt seen and supported. So, they went outside. They sought out "soothing spaces" where they could "feel safe socializing". That's how the Fireweed Club came to be. These days the DRA has its hand in so many wonderful initiatives, all which support inclusion, environmental awareness, and social engagement. A community works together to be more inclusive. Watch Full Event HERE MAPPING DEMENTIA-FRIENDLY CULTURE Dementia Educator and community advocate Helen Murphy has dedicated her career to making the North Shore and surrounding communities more dementia-friendly. She provides training for North Shore organizations, speaks to community groups, and volunteers in developing new programs and opportunities for people with dementia to live better lives in a community that is "wise, inclusive and socially integrated". Watch Full Event HERE ON THE VALUE OF INTERGENERATIONAL CONNECTION The Building Capacity Project team in Thunder Bay, Ontario partners with the Northwest Dementia Working Group on a number of fantastic community initiatives. The team is very grateful to the NWDWG members who have volunteered to help run some of their Dementia Cafes over the years, for instance, as these cafes are a great opportunity for people in the community to witness for themselves how important representation is, how much capacity there is among people with lived experience, and to be a apart of breaking down stigma. THE NEED FOR PEOPLE WITH DEMENTIA IN ADVOCACY ROLES Lynn Jackson is an action group member with lived experience who played a key role in developing the Flipping Stigma Toolkit, a new online resource helping educate caregivers, people with lived experience, researchers, and the public at large about how to respond to stigma around dementia. Jackson talks about how important it is for care partners to empower people with dementia to stay engaged and active. Fostering autonomy while supporting someone with dementia works to maintain their sense of personhood. Treating them like they're sick makes them feel that way. Watch Full Event HERE CARE PARTNERS EMPOWERING PEOPLE WITH DEMENTIA Dr. Elaine Wiersma of the Centre for Education and Research on Aging and Health at Lakehead University talks about the need to amplify a wider cross section of voices when it comes to the lived experience of people with dementia. If our exposure of these experiences stays too narrow, we run the risk of silencing important wisdoms, staying uninformed as to the broad range of experiences, and keeping devastating stigmas alive. AMPLIFYING DIVERSE VOICES: THE VALUE OF LIVED EXPERIENCE Art is a powerful vehicle for shifting perceptions and shaping culture. AND it's one way of letting your voice be heard when the words themselves might be too hard to say. Whether it's a poem, a collage, a painting, or a dance, the arts can be incredibly helpful and moving for people with dementia at all stages of their journey, and can help the public gain insight into their experience. ART AS A VEHICLE FOR CHANGE

​ VOLUNTEERS YOU can help participate in community conversations assist with social, creative & physical activities provide technical expertise & logistical support interview & write stories Volunteers are essential partners in making Hub Partners' programs meaningful opportunities for participants. Your interactions with people living with dementia become important connections to community and diversify the kinds of activities that Hub Partners can offer. ​ Hub Partners would like to hear from you! Visit the Current Hub Partner Projects page to see which project is most attractive and contact the Partner sponsoring it.

JOIN THE HUB There are many ways to become involved in the Hub. We are always looking for new members. Devenez partenaire : Si vous êtes une organisation publique, à but non lucratif ou confessionnelle au service des aînés de Vancouver, nous aimerions collaborer avec vous! Rejoignez le Hub Council : Apprenez-en davantage sur notre Westside Seniors Hub Council, composé de personnes âgées bénévoles ou de personnes travaillant avec des personnes âgées. Nous recrutons continuellement de nouveaux membres. Rejoignez un comité : Les comités centraux sont des groupes axés sur des problèmes et axés sur l'action, composés de représentants du Conseil, d'organisations partenaires et de la communauté. De 2015 à 2019, nous avons eu 3 comités actifs travaillant sur divers projets : santé et bien-être; accès & mobilité et communications. Compte tenu de l'approche holistique de notre projet actuel, Dementia Ventures, les membres du comité travaillent maintenant ensemble pour résoudre les problèmes en collaboration. Hub Committees are issue-based, action-oriented groups made up of representatives from the Council, Partner Organizations, and community. From 2015-2019 we had 3 active committees working on various projects : health & wellness; access & mobility and communications. Given the holistic approach of our current project, Dementia Ventures, committee members are now working together to address issues collaboratively. Devenir un partenaire Partenaires actuels Learn about the Hub Council Contact us to join the Hub Learn about Hub Committees Opportunities to get involved