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We'd love to know what you think! Name Your email address What two or three words come to mind when viewing this image? How does this image impact the way you think about Dementia? Would you like to know more about Dementia? Yes No Not sure SUBMIT

VOLUNTEERS YOU can help participate in community conversations assist with social, creative & physical activities provide technical expertise & logistical support interview & write stories Volunteers are essential partners in making Hub Partners' programs meaningful opportunities for participants. Your interactions with people living with dementia become important connections to community and diversify the kinds of activities that Hub Partners can offer. Hub Partners would like to hear from you! Visit the Current Hub Partner Projects page to see which project is most attractive and contact the Partner sponsoring it.

Outils d'engagement Les parties prenantes partout dans notre société peuvent favoriser la résilience des êtres chers qui éprouvent des difficultés cognitives. Tout le monde lutte pour l'inclusion sociale et la reconnaissance de sa personnalité, et les personnes atteintes de démence et leurs aidants ne font pas exception. Quelle est la recette du succès pour favoriser la résilience? Dementia Ventures vise à atteindre un large éventail de parties prenantes et à fournir aux organisations communautaires des outils pour s'engager efficacement avec les personnes confrontées à des problèmes cognitifs. Donnons-leur plus d'opportunités! Et comment? Laissez la voix et l'expérience des êtres chers vivant avec la démence éclairer la planification d'activités significatives qui apportent de la joie à toutes les personnes impliquées! Vous trouverez ci-dessous des outils incroyables pour vous aider à vous engager et à faire la différence. Mots et approches puissants Engagement significatif Justifications concises du changement QUE CONSTITUE LE CÔTÉ OUEST? Nous définissons la zone de chalandise du Westside Seniors Hub comme suit: À l'ouest de la rue Ontario, tout le chemin pour inclure UBC et les terres de dotation Au sud de la rue Cornwall et de False Creek Au nord de Marine Drive À noter que la zone de chalandise n'inclut pas la péninsule du centre-ville ou l'île Granville. Les partenaires dont le bureau est en dehors de notre zone de chalandise sont invités à se joindre à nous s'ils servent activement les aînés de Westside . WHAT IS THE RECIPE FOR SUCCESS IN FOSTERING RESILIENCE? Dementia Ventures aims to reach a broad range of stakeholders and provide community organizations with tools to engage effectively with people experiencing cognitive challenges. Let’s give them more opportunities! And how? Let the voices and experience of loved ones living with dementia inform the planning of meaningful activities that bring joy to everyone involved! You will find some amazing tools below to help you engage and make a difference. Powerful Words & Approaches Concise Rationales for Change Meaningful Engagement Top of Tools for Engagement Concise rationales POWERFUL WORDS & APPROACHES CONCISE RATIONALES FOR CHANGE Practice Tools & Factsheets (I-CAARE) A Quick Guide To: Approaches ; PIECES of My Relationships (Guidelines, Questions, Family Supplement); Medicine Wheel: Preventing Dementia in Indigenous People by Aging Well ; The Pathway of Dementia Person-centered Language Guidelines Alzheimer Society of Canada “By being more conscious of the language we use, we can avoid reducing individuals with Alzheimer’s disease and other dementias to a series of labels, symptoms or medical terms.” Dementia & Language Dementia Alliance International Organizational philosophy:”Nothing about us, without us.” Approach conversations with and about people living with dementia using respectful language that does not stigmatize and demean. Media should reflect DAI's Core Beliefs. Why Arts-based Activities? Westside Seniors Hub, Vancouver, BC Rationale for social engagement through the arts, credible evidence, and links to model programs that demonstrate how arts-based creative activities can have profound impacts on people at every stage of the dementia trajectory. Flipping Stigma on Its Ear Toolkit Taking Action Against Stigma and Discrimination Associated With Dementia University of British Columbia, CIHR Action Research Project “The purpose of this toolkit is to recognize and respond to this stigma and discrimination…designed by people with dementia to help others – including other people living with dementia, service providers, physicians, family members and friends – to address the challenges of stigma and discrimination.” Hear from the experts who live with dementia – what they experience, how they respond to stigma and discrimination as advocates for themselves and others, how they build skills and competence. Powerful tools from people living with dementia with more being developed for support persons and researchers. What is the Building Capacity Project all about? Westside Seniors Hub, Vancouver, BC Meaningful Engagement MEANINGFUL ENGAGEMENT Tipsheet for accessibility & equity in online engagement MJ Wosk Centre for Dialogue, SFU, Burnaby, BC “It is important to consider how community members’ identities and experiences may impact their ability to learn about, access or participate safely in an engagement—and tailor plans to suit diverse needs.” Beyond Inclusion: Equity in Public Engagement MJ Wosk Centre for Dialogue, SFU, Burnaby, BC “Hearing from people with diverse lived experiences leads to more innovative ideas, better decisions, greater public support of outcomes…This guide is designed for individuals sponsoring or planning public engagement initiatives that will inform decision-making...outlines some factors practitioners can reflect on when scoping and designing engagement processes.” Healthy Community Engagement Action Guide PlanH, BC Healthy Communities Featuring community examples, resources, strategies and other useful information, this guide helps local governments plan their community input process to ensure…equity-centred, inclusive community engagement…to create healthier, more accessible communities. Making Your Workplace Dementia Friendly Alzheimer Society of BC Specific resources for professionals who are in legal, financial, housing, and recreation professions … ”to understand and recognize the signs of dementia…communicate in an effective, respectful way…think about specific ways they can support a person with dementia in their work and how their workplace may become more dementia friendly.…know what resources are available to them and their customers or clients.” Busting Dementia Stigma: One Children's Book at a Time WA Dementia Action Collaborative “Are you a parent, teacher or librarian who wants to help build dementia awareness and challenge stigma? Children’s books can be a great tool! The criteria below can help you evaluate children’s books and select ones that carry a respectful, stigma-busting message.” Back to Resources - Dementia Ventures

PAST PROJECTS DEMENTIA VENTURES September 2023 - March 2025 Additional PHAC funding allows Dementia Ventures projects to deepen their impact. Initiatives elsewhere in BC will involve people living with dementia and community members to create new engagement programs, and result in publication of an Action Guide that offers insights for communities building capacity for greater social citizenship by people experiencing dementia. DEMENTIA VENTURES - BUILDING CAPACITY PROJECT September 2019 - March 2023 Building Capacity for Meaningful Participation by People Living with Dementia , an initiative funded by the Public Health Agency of Canada (PHAC), aimed to enable people with dementia to participate in community life as full social citizens. The project was a partnership between researchers at the University of British Columbia and Lakehead University, and their community partners: members of the Westside Seniors Hub in Vancouver and the Northwest Dementia Working Group in Thunder Bay, a coalition of people with lived experience, care partners, and researchers. In Vancouver, where the initiative is known as Dementia Ventures, six Hub Partners implemented programs that created opportunities for active involvement of people with dementia, such as a virtual memory café, a buddy program, outdoor activities, and discussions among faith-based congregations. Read more about Dementia Ventures here and Hub Partners’ stories here . CYCLING WITHOUT AGE EVENT September 28, 201 9 Cycling Without Age Vancouver, in association with Kitsilano Neighbourhood House and the Westside Seniors Hub, are hosting safe and scenic trishaw rides along the Arbutus Greenway on September 28th from 10:00am to 2:00pm. Trishaws are three-wheeled cycles where you sit in the front and experienced pilots pedal you from behind. Our mission is to break the elderly free from social isolation. Make them smile. Make new memories. And let them be part of society again and thereby renew their appetite for life itself. We give them the right to wind in their hair. Cycling Without Age is based on generosity and kindness. Event HUbBYTES NEWSLETTERS July, September, November 2019 and re-launched December 2021 - present In 2019 Hub Council began compiling resources of potential value to Hub Partner Organizations that we encountered as we attended events and made community contacts. The MailChimp illustrated newsletters are now sent out quarterly to Hub Partners and community members who sign up. Read current and past editions and sign up here . DEMENTIA PROJECT - HUB FIRST STEPS TOGETHER October-November 2018 Hub Council convened a working group of representatives from Partner Organizations to discuss and decide upon actions to be taken after a presentation about Alzheimer cafés and other dementia-friendly initiatives. At two meetings, some Guiding Principles were drafted. First Steps Together 2017-2018 WALK AND BE SEEN CAMPAIGN The 2017-2018 Vancouver Walk and Be Seen (WBS) campaign was a great success! The finale held in March included presentations by Safety Ambassadors from 17 organizations from Metro Vancouver. Seniors were involved in organizing neighbourhood Walk and Be Seen projects. For those who attended the finale, there was no doubt that many were Proud to be Seniors and Proud to be Seen-iors! During the campaign, volunteer Ambassadors spoke to seniors in their communities about pedestrian safety and the benefits of increasing their visibility in low-light conditions by wearing reflective or light-emitting gear. The comments, stories and survey results collected in this campaign clearly showed grassroots support for increased pedestrian visibility. 2018 WBS Report FORUM ON SENIORS HOUSING ON THE WESTSIDE OF VANCOUVER July 2017 The Westside Seniors Hub, through the Jewish Family Services Agency, received a grant from Vancouver Coastal Health to research seniors housing on the Westside of Vancouver. A researcher interviewed more than forty stakeholders, from housing experts to seniors with housing issues. The report Seniors Housing on the Westside of Vancouver is based on these interviews. The Hub then organized a half-day Housing Forum on April 26, 2017 to further explore housing issues with those interviewed and important stakeholders. The Forum included panel presentations on housing innovation by leaders from Kitsilano Neighbourhood House, the United Way of the Lower Mainland, LaneFab and Calling Ministries, and 36 participants joined two consecutive groups to explore key issues and formulate recommendations. Forum Report 2016-2017 WALK AND BE SEEN PILOT PROJECT Walk and Be Seen (WBS) was a volunteer pilot project on the Westside of Vancouver involving senior pedestrians. It was designed to promote walking during low-light conditions while wearing reflective apparel in response to statistics that show senior pedestrians experiencing the highest number of fatalities from collisions in Vancouver. The project registered 132 participants who agreed to wear free reflective gear (cloth sash or LED slapband), tally walks of any length, and provide feedback. Upon completion, 79 registrants completed a survey and provided comments. An Action Mini-Grant (VGH Trauma Services, Vancouver Coastal Health) provided initial funding with Kitsilano Neighbourhood House, Mountain Equipment Coop, the Jewish Family Services Agency, and WalkMetroVan contributing additional funds and administrative support. 2017 WBS Report 10th AVENUE HEALTH PRECINCT PLANNING UPDATES May 2017 The City of Vancouver Transportation Department undertook a two-phase public consultation process in 2015-2016 regarding redesign proposals for the West 10th Avenue ‘Health Precinct’ (Cambie to Oak Streets). Seniors, persons with disabilities, and many stakeholders provided feedback on those proposals. The Hub noted a few significant design changes as a result of citizen input. NATIONAL SENIORS DAY FAIR October 2015 Event ELDER ABUSE INFORMATION WORKSHOP June 2015 Event DEMENTIA-FRIENDLY TRAINING SESSIONS April 2015 A series of three training sessions with presenters from the Alzheimer Society of BC were arranged and offered to staff and volunteers of Hub Partner organizations and the general public. Report

Guides pour la programmation inclusive CLICK in the links below REAWAKENING THE MIND Dirigés par les seniors: L e Hub est dirigé par des personnes âgées afin de mieux répondre aux besoins des personnes âgées. Il favorise un processus de vieillissement en bonne santé, reconnaissant que plusieurs générations et cohortes ont besoin de différentes activités et soutiens. Les aînés fournissent des conseils sur l'amélioration de l'accessibilité des programmes pour aînés et la prise en compte de la diversité des intérêts des aînés. SHARING MEMORIES: REMINISCENCE ACTIVITIES (Lee County Library System, Florida) Programs that find meaning in memories, storytelling, letter writing, community conversations and tips for success in engagement. HOW-TO GUIDES FOR WALKING GROUPS AND CAFÉS Dirigés par les seniors: L e Hub est dirigé par des personnes âgées afin de mieux répondre aux besoins des personnes âgées. Il favorise un processus de vieillissement en bonne santé, reconnaissant que plusieurs générations et cohortes ont besoin de différentes activités et soutiens. Les aînés fournissent des conseils sur l'amélioration de l'accessibilité des programmes pour aînés et la prise en compte de la diversité des intérêts des aînés. COMMUNITY-ENGAGED ARTS PRACTICE WITH SENIORS: A STARTUP GUIDE (Arts and Health, Canada) “Community-engaged arts programs promote the health, well-being and social inclusion of older adults…address the gap between the existing supports available for well seniors in recreation facilities and those for very frail seniors…provide a forum for exploration, imagination, and communication that can transform individual lives and profoundly impact community life.” DEMENTIA PROGRAMS Dirigés par les seniors: L e Hub est dirigé par des personnes âgées afin de mieux répondre aux besoins des personnes âgées. Il favorise un processus de vieillissement en bonne santé, reconnaissant que plusieurs générations et cohortes ont besoin de différentes activités et soutiens. Les aînés fournissent des conseils sur l'amélioration de l'accessibilité des programmes pour aînés et la prise en compte de la diversité des intérêts des aînés. SOCIAL ISOLATION OF SENIORS: IDEAS EXCHANGE EVENT TOOLKIT “Toolkit is meant to help people and organizations host effective meetings to exchange ideas and respond to the social isolation of seniors in their communities. It contains tools, templates and support resources for hosting an ideas exchange event.” Back to Resources - Dementia Ventures

JOB OPPORTUNITIES Westside Seniors Hub Council Join the Council's Volunteer Team Council members: We are recruiting volunteers to join us and ensure that Westside neighbourhoods are places where seniors can thrive. To find out more about the role of Council in Hub affairs, click he re . For more details about a Council member's role, please click here Digital Communications Assistant: One or two people to assist with publishing the Hub's quarterly newsletter, Hub Bytes, and/or with maintaining the Hub's website up to date. More details here D Di Westside Seniors Hub Coordinator Join us to assist WSH leadership in the coordination and outreach to Westside stakeholders on seniors’ issues. Council is seeking a The Council Coordinator for a new 14 hours per week position to assist WSH leadership in coordination and outreach to Westside stakeholders on seniors’ issues. We are looking for a self-motivated individual with an interest in seniors’ issues. Details in the job description here . Please apply by May 13, 2024. Family Caregivers of BC J oin FCBC's Volunteer Team Support Group Facilitators: Seeking volunteers to create a safe and open space for caregivers to share their concerns and challenges. Facilitators are people with strong listening skills, discretion, empathy and ability to empower individuals to be involved in making decisions about their own care. Host and Virtual Assistant: For our Virtual Journal Workshop for Caregivers...an ongoing program offered to to caregivers who are interested in engaging in structured writing that is private and self-reflective...You would provide technical online support to the facilitator and participants . Caregiver Support Assistant: L ooking for two Caregiver Support Assistants to provide administration support to our caregiver support team at FCBC...use your technical skills to assist with general office duties, filing, emails, help with communication and outreach. More details and application forms here ASK Friendship Society CALLS for VOLUNTEERS Board Members: ASK is growing! Help lead and manage that process, we are looking to fill 2-4 Board positions with committed individuals who have experience in human resources, administration, fundraising, etc. Youth & student opportunities too, More details and application forms here

Events - Return to top SOUND BYTES SERIES Return to top Hub Community Action That Builds Capacity The Dementia Ventures project empowers Hub Partners to build out inclusive community programming for all and adapt to include people living with dementia. They and their care partners want to remain socially engaged in meaningful activities. A collaboration with UBC’s Dr. Alison Phinney and her Building Capacity team offers financial, strategic and logistical resources so programs can welcome and support those with dementia and their care partners. We celebrated midway in this initiative with a series of vibrant online community dialogues. The theme was: “What it means to be an accepting and inclusive community.” SoundBytes wants to share wisdom from those dialogues. Here are our first nuggets. There will be many more! PAVING THE WAY FOR OTHERS WITH DEMENTIA ... BC-based Lynn Jackson is a retired nurse and highly active advocate for people living with dementia. She's a member of several action groups and continues to blaze a trail for others to live well and feel empowered living with dementia. Watch Full Event HERE A PERSON-CENTERED APPROACH TO DEMENTIA ... In a recent Dementia Dialogue podcast interview, BC artist and advocate Granville Johnson reminds us how crucial it is that people with dementia be involved in planning and decision making for initiatives that affect their lives. "Inclusion creates understanding, facilitates empathy, and shares love." For more on the importance of including and respecting people with dementia, please visit buildingcapacityproject.com and flippingstigma.com Watch Full Event HERE STRENGTH IN NUMBERS ... This excerpt from a new episode of Dementia Dialogue features UBC's Dr. Alison Phinney on overcoming barriers to community engagement for people living with dementia. Dr. Phinney discusses what she's learned through her extensive research, and how important it is to have a team. Joining her in discussion on the episode is Community Research Coordinator Dr. Andrea Monteiro and BC-based Lynn Jackson, a dementia advocate and retired nurse living with dementia who explains what's been most effective for her. Watch Full Event HERE THE BEAUTY OF INCLUSION ... Veteran dementia advocate and Thunder Bay resident Bill Heibein expresses his deep appreciation for the inclusive and warm nature of his local Dementia Cafe and its refreshing lack of labels. "No one asks who's who; they just welcome you in the door." Sounds pretty lovely to us! Watch Full Event HERE THE POWER IN THE WORDS WE USE ... When John's doctor made a joke out of his dementia, he was deeply hurt. It's these kinds of microaggressions that create the biggest barriers for people with dementia to live well. Words like these that silence people who really need to speak and share. Help us empower people with lived experience to know they're entitled to live their best life too. Watch Full Event HERE PERSPECTIVE IS EVERYTHING ... BC-based artist and advocate Granville Johnson spoke out about fear and the power of our perspective on Dementia Dialogue's most recent podcast episode, addressing the ways we can choose to gain some sense of control and joy back into our lives even in the face of new challenges. Watch Full Event HERE WHAT HOLDS US BACK The biggest challenge to community support for people living with dementia. In the most recent podcast episode of Dementia Dialogue, Dr. Alison Phinney discusses the stigma attached to dementia diagnoses and how that impacts community support efforts. She speaks with host Lisa Loiselle and fellow podcast guest Granville Johnson, who lives with dementia himself, about the important balance to be struck between training and education on one hand, and engaging with people with lived experience on the other. Watch Full Event HERE TURNING TOWARDS THE PERSON WITH DEMENTIA A care partners perspective on what helps. Karen Rolston’s mother Louise started getting inklings something was a little “off” back in 2011. At the time, the Rolstons were already in the process of creating a laneway house on their property for her, so they could live close together. The timing worked out well. Louise lived there for seven years beside her daughter Karen, Karen’s husband, and their daughter. Those years were, “a beautiful opportunity for us to just wrap mom with more support and care while she was able to live in her own space,”Karen said. When Karen thinks about the journey she has been on with her mom, and the reactions from people when it comes to dementia, the word that comes to mind is fear. “People find out someone has dementia, and they think, ‘Am I going to receive this diagnosis too?’ ‘Is someone I love going to get dementia?’” Rolston said. Fear seeps in and too often, people pull away. “People often don’t know what to say or do, so they turn away from those with dementia instead of turning toward them with love,”Rolston said. Rolston is extremely grateful for community supports. Her mom really enjoyed the Alzheimer Society’s Minds in Motion program, the Alzheimer’s Café and the Helena choir she joined. “These community groups are where we felt really held,” she said. “It’s such a painful journey and there is still so much we can do.” In this Soundbyte, Rolston offers her thoughts on how to really tune into a person’s needs and meet them where they are, rather than seeing their responses as resistance or defiance. Loving and showing up for someone with dementia is about cherishing the now, embracing their world, and accepting what is. Watch Full Event HERE ANDRÉ PICARD ON THE MEDIA'S ROLE IN STAMPING OUT STIGMA ... Esteemed Globe and Mail Columnist André Picard wrote Neglected No More: The Urgent Need to Improve the Lives of Canada’s Elders in the Wake of a Pandemic in 2021, a book that discusses what needs to change to shift the culture of long-term care across our country. “Picard reveals the full extent of the crisis in eldercare and offers an urgently needed prescription to fix a broken system and ensure long-term care homes are not warehouses of isolation and neglect” Penguin Random House states on their site. Care home COVID outbreaks seemed to be exploding in every region of the country at the time, drawing attention to the deplorable working conditions they had for employees, the resulting neglect residents experienced, and the total lack of support for the institutions in general. In this storyboard, Picard says media needs to highlight not just worst-case scenarios meant to shock and awe, but stories about people living quite well for a long time with dementia. Seeing more people with dementia in our day-to-day activities—including in the news— would normalize that experience as a way of reducing stigma. Lastly, he emphasized the importance of having people with dementia sit on boards and committees on which they get a real vote in the outcomes of important decisions. Watch Full Event HERE SUZUKI ELDERS On the value of art in supporting the dementia journey... Rob Dramer and Lilllian Ireland are self-identified elders who work with the Suzuki foundation mentoring and supporting other elders and younger generations in dialogue and action on environmental issues. They're also traveling performers who offer a multi-sensory show featuring songs they've written about biodiversity, interspersed with some familiar tunes to help audiences tap into earlier memories. Music elicits powerful connections, and they invite audience members to join in the fun alongside them and their collection of beautiful local animal puppets. Watch Full Event HERE POETRY On the value of art in supporting the dementia journey... Myrna Norman is an author, artist, and dementia advocate based in Maple Ridge. In 2009, when Norman was diagnosed with Frontal Temporal Dementia and given eight years to live, she went home ready to die. But after grieving this news for a couple of weeks, Norman decided to do what she’s best at: advocating for change. She became heavily involved in initiatives that let others in her situation know they weren’t alone. Thirteen years later, Norman’s passion, generosity of spirit, and charisma have touched so many lives. Her book, “Dementia Strategies, Tips and Personal Stories,” has become an indispensable voice of validation and support. Norman has participated in multi-year research studies, art-making groups and task forces including The Dementia Sisterhood, the Dementia Action Committee, Dementia Advocacy Canada, the Dementia Friendly Task Force, and now the Building Capacity Project to name just a few. She’s also collaborating with researchers and designers at Emily Carr University’s Health Design Lab to develop a series of workbooks geared at supporting researchers to engage in collaborative work with people with lived experience. And to all these roles, she brings her signature energy, compassion, and love for showing people their strength. Watch Full Event HERE BEACON *Shining Light on Dementia An Initiative to build an inclusive congregation at Pacific Spirit United Church. A dedicated group of congregation members at Pacific Spirit United Church worked together over the course of a year to create an incredible and insightful four-part series on dementia that you can access online. They had noticed church members struggling with cognitive decline and family members worried about finding extra care, so they dove in to offer support. Their commitment to fostering a dementia friendly culture at their church has since inspired many other groups to take action too. For more details go to www.pacificspiritc.com and click on "ministries". The series is under "Beacon *shinning light on dementia." Watch Full Event HERE LET'S TALK ABOUT DEMENTIA The Flipping Stigma Toolkit An Action Group of people living with dementia came together and developed a toolkit to start a conversation about stigma and discrimination in dementia. The Flipping Stigma Toolkit is a project where a group of people diagnosed with dementia partnered with a research team to develop an online toolkit. This Action Group, funded by a research grant from the Canadian Institute of Health and Research, co-designed the toolkit to help people with dementia recognize and respond to stigma and discrimination -and to help others better understand ho to be supportive-. The Goa? Flip that fear on its ear. To learn more visit www.flippingstigma.com Watch Full Event HERE EMILY CARR UNIVERSITY'S HEALTH DESIGN LAB Emily Carr University's Health Design Lab employs participatory methods to lift up the perspectives of people with lived experience. Researchers and designers at Emily Carr University’s Health Design Lab use participatory design methods to catalyze, support and amplify initiatives addressing complex health challenges like dementia. “We use design methods to help engage people with dementia in initiatives that directly impact their lives,” said Lab Director Caylee Raber. The team’s current project is called Collaborate, Gather, Share—a workbook series co-designed by people with lived experience to help drive reflection around how they can be brought into research projects and how best to support those collaborations, recognizing people with dementia as experts. Their recent video, “Perspectives,” paired design students with long-term care residents. They co-designed and co-wrote mini publications featuring residents’ stories. Students developed creative games and activities to help draw out residents’ stories that they then captured in zines and mini-books, some even embroidered on quilts. Lastly, the team worked with Vancouver Coastal Health for four years on a project focused on shifting the culture of care in long-term facilities. All the Lab’s work focuses on how researchers and designers can use their skills and expertise to build upon work already being done—facilitating creative expression and self advocacy for people with dementia and getting those messages out to the world. Watch Full Event HERE REPRESENTATION MATTERS The power of seeing our experiences in the stories of others. Author, artist, and dementia advocate Myrna Norman runs a peer support group for others with dementia in her lower mainland community called the Purple Angels Memory Café. The group meets four times a month, and sometimes outdoors in summer when the weather is beautiful. Every second week, it’s the Army and Navy Club for a beer and live music. Members take turns bringing refreshments and treats and have fundraised up to $300 to put towards games and activities they can play together. The group is a wonderful way to connect with others, share similar experiences, and gain support and a powerful sense of belonging. The best part? Membership is free. “The gift [members] give to me is so much more than could ever be paid,” said Norman. One new member who joined a couple of weeks ago turned to Myrna as he was leaving the Army and Navy Club and said, “Myrna, I feel different now. The music touched something inside of me.” “I still get the shivers thinking about it,” Norman said of the comment. It’s revelations like this one that drew her to this work. For more information or to check out the Purple Angels sometime, email Myrna Norman at: the.normans@shaw.ca Watch Full Event HERE THE POWER OF SUPPORT FROM OUR FAITH & CULTURE GROUPS Shared values and perspectives Reverend Deborah Liang has been a minister in the United Church of Canada for 37 years, the last four at Pacific Spirit Kerrisdale. She's seen how good communities gather around people in both their joys and troubles, contributing immensely to their quality of life. She also served as chaplain at a rural hospital and learned so much from nurses and program staff there about support, respect and care for people with dementia. Watch Full Event HERE RESPONDING TO DEMENTIA THROUGH A CROSS-CULTURAL LENS Shared values and perspectives One Vancouver man who has been advocating for the treatment and care of people with dementia ever since his dementia diagnosis over a decade ago, discusses how dementia is viewed through various cultural lenses. He explains how those lenses affect families' and individual's responses to diagnosis and decisions around treatment. Watch Full Event HERE TRUSTING OUR SENSE OF SELF ABOVE ALL ELSE Shared values and perspectives BC artist and dementia advocate Granville Johnson talks about the importance of trusting one's sense of self above all else when living with dementia. "The world might not know we're capable, but we can know it and live it and continue to pursue our dreams." Johnson lives in remote part of British Columbia where he's currently working on a novel. Watch Full Event HERE ON BRAVERY AND THE POWER OF SHARING OUR STORY Shared values and perspectives When Lester was first diagnosed with dementia, he and his wife and care partner Cindy found that some of their friends and family reacted with disbelief. Others weren't sure how to talk to him. Sharing the Flipping Stigma toolkit with their church and social communities gave the couple a chance to contextualize dementia for those who didn't know much about it. The toolkit allayed fears, provided reassurance, and ultimately resulted in Lester AND Cindy feeling they could open up more about his diagnosis, feel less shame, and share more of their journey with the people they cared about. The toolkit helped them feel much more deeply understood. Watch Full Event HERE HOW FOCUSING ON A PURPOSE BUILDS RESILIENCE Bill Heibein's journey with dementia. Bill Heibein continues to live on the farm he shared with his late wife Heather just outside Kakabeka Falls, Ontario. When he was diagnosed with dementia in 2000, doctors told him he'd have about five more years to live "usefully". Twenty-two years later, he has proven them wrong. In addition to caring for his horses, Bill volunteers as an advocate with the Northwest Dementia Working Group, helps run Dementia Cafes in the community, and is passionate about encouraging others with lived experience to get involved, advocate for themselves, and find purpose. Bill says it's that deep sense of purpose that's fuelled his ability to thrive with dementia for so long, and he's confident others can do the same. Watch Full Event HERE MAPPING DEMENTIA-FRIENDLY CULTURE A community works together to be more inclusive. When COVID-19 threatened to halt all their efforts in their tracks, Andrea Sara and her team found was to move online, gather virtually, solve problems, and dream big anyway. They worried for seniors who'd been hit particularly hard by increased isolation and wanted to ensure everyone in their community felt seen and supported. So, they went outside. They sought out "soothing spaces" where they could "feel safe socializing". That's how the Fireweed Club came to be. These days the DRA has its hand in so many wonderful initiatives, all which support inclusion, environmental awareness, and social engagement. Watch Full Event HERE ON THE VALUE OF INTERGENERATIONAL CONNECTION ... Dementia Educator and community advocate Helen Murphy has dedicated her career to making the North Shore and surrounding communities more dementia-friendly. She provides training for North Shore organizations, speaks to community groups, and volunteers in developing new programs and opportunities for people with dementia to live better lives in a community that is "wise, inclusive and socially integrated". Watch Full Event HERE THE NEED FOR PEOPLE WITH DEMENTIA IN ADVOCACY ROLES ... The Building Capacity Project team in Thunder Bay, Ontario partners with the Northwest Dementia Working Group on a number of fantastic community initiatives. The team is very grateful to the NWDWG members who have volunteered to help run some of their Dementia Cafes over the years, for instance, as these cafes are a great opportunity for people in the community to witness for themselves how important representation is, how much capacity there is among people with lived experience, and to be a apart of breaking down stigma. . CARE PARTNERS EMPOWERING PEOPLE WITH DEMENTIA ... Lynn Jackson is an action group member with lived experience who played a key role in developing the Flipping Stigma Toolkit, a new online resource helping educate caregivers, people with lived experience, researchers, and the public at large about how to respond to stigma around dementia. Jackson talks about how important it is for care partners to empower people with dementia to stay engaged and active. Fostering autonomy while supporting someone with dementia works to maintain their sense of personhood. Treating them like they're sick makes them feel that way. Watch Full Event HERE AMPLIFYING DIVERSE VOICES: THE VALUE OF LIVED EXPERIENCE ... Dr. Elaine Wiersma of the Centre for Education and Research on Aging and Health at Lakehead University talks about the need to amplify a wider cross section of voices when it comes to the lived experience of people with dementia. If our exposure of these experiences stays too narrow, we run the risk of silencing important wisdoms, staying uninformed as to the broad range of experiences, and keeping devastating stigmas alive. . ART AS A VEHICLE FOR CHANGE ... Art is a powerful vehicle for shifting perceptions and shaping culture. AND it's one way of letting your voice be heard when the words themselves might be too hard to say. Whether it's a poem, a collage, a painting, or a dance, the arts can be incredibly helpful and moving for people with dementia at all stages of their journey, and can help the public gain insight into their experience. .

OPPORTUNITIES DEMENTIA VENTURES Would you like to help the Hub achieve its goals of creating a more inclusive community and increasing social citizenship of people living with dementia? Then please consider helping plan, implement and sustain meaningful activities. Here are some opportunities for community members to become involved in Dementia Ventures. Please contact the Partner Organization directly or send a message to the Hub for details. Postings will remain here until a Partner notifies the webmaster that a position is no longer available. KITSILANO NEIGHBOURHOOD HOUSE Kits House has launched a dementia awareness initiative. There are opportunities to join focus groups that will guide program development. There is a dementia buddies program with training to communicate and help people experiencing dementia live well in the community. Other awareness activities and conversations are planned to make our community more dementia friendly Click here to find out more. WESTSIDE SENIORS HUB COUNCIL The Hub Council is recruiting volunteers to join us and ensure that Westside neighbourhoods are places where seniors can thrive. We work collaboratively with Hub Partners on projects such as Dementia Ventures . For more information, please click here . SOUTH GRANVILLE SENIOR CENTRE Enabling Connections...A Tablet Lending Library South Granville Seniors Centre & Many Partners “The four elements of the Enabling Connections program are: a tablet lending library, digital literacy mentoring, a virtual senior’s centre, and knowledge sharing with other organizations. The Enabling Connections project is focused on creating connections between individuals and creating a sense of community and mutual support, peer to peer.” Project launched May 6, 2021. Information here FAQ here The Seniors Centre offers a monthly Happy Memories Café that is a safe place to share your experiences, participate in discussions and build lasting friendships. Click here for information. FIREWEED CLUB Dunbar Residents Association & Kitsilano Neighbourhood House The Fireweed Club is a collaborative project bringing a variety of free outdoor activities to seniors on the westside. These activities are open to any seniors who want to stay active, socialize and build relationships. People living with memory loss or other invisible challenges are welcome to come by themselves or to bring their friends and care partners. The Club seeks participants, program leaders and volunteers all year. More information here .

Help Lines Top HELP LINES Click on the buttons below. bc211 Information & Referral 311 City of Vancouver 811 BC Health Link BC Seniors' Advocate Alzheimer - FirstLink® SOTM: Seniors Transportation Options SAIL: Seniors Abuse & Information Line Greater Vancouver Seniors Distress Lines Ability 411 Assistive Technologies & Equipment AssistList: Home Health Equipment Exchange BC211 PROVINCE-WIDE INFORMATION & REFERRAL SERVICES 24/7 bc211  is a British Columbia, non-profit organization that provides a free, confidential, multilingual (160 languages) information about community, government and social services in BC. As a response to COVID-19, bc211 accepts applications for the Safe Seniors, Strong Communities program, both from seniors wanting help and from volunteers willing to step up and help with non-medical needs. Multilingual : Yes (160 languages) Hours : 24/7 Contact: Dial: 211 Text: 211 Web: https://www.bc211.ca Twitter: @bc211Help Email: help@bc211.ca Return to top bc211 311 City of Vancouver 311 CITY OF VANCOUVER Help line within the City for seeking information about operations and services or to report problems. During COVID-19 only use 311 for urgent requests or language interpretation. Otherwise use online chat and email at City website. Multilingual : Yes Hours : 7am to 10pm daily Live chat 9am-4pm Contact: Dial 311 within Metro Vancouver. Outside Vancouver: 604-873-7000 App: VanConnect Web: https://vancouver.ca/your-government/contact-the-city-of vancouver.aspx Return to top ALZHEIMER SOCIETY FIRST LINK ® DEMENTIA HELPLINE If you have questions about Alzheimer’s disease or other dementias, call the Alzheimer Society of B.C.'s First Link® Dementia Helpline for information and support (toll-free): Dial: - English: 1-800-936-6033 (Monday to Friday, 9 a.m. to 8 p.m.) - Cantonese and Mandarin: 1-833-674-5007 (Monday to Friday, 9 a.m. to 4 p.m.) - Punjabi: 1-833-674-5003 (Monday to Friday, 9 a.m. to 4 p.m.) Web: https://alzheimer.ca/bc/en/help-support/find-support-bc/first-link-dementia-helpline Return to top FirstLink Dementia Helpline 811 HealthLinkBC 811 HEALTHLINK BC 811 is a free-of-charge provincial health information and advice phone line available in British Columbia to speak to a health service navigator, who can help you find non-emergency health information and services; or connect you directly with a registered nurse, a registered dietitian, a qualified exercise professional, or a pharmacist. Multilingual : Yes (130 languages) For translated resources in French, Arabic, Chinese, Farsi, Punjabi, Spanish and Vietnamesego to https://www.healthlinkbc.ca/services-and-resources/translated-resources Hours : 24/7 Contact: Dial: 811 Web: https://www.healthlinkbc.ca/ For nursing services: https://www.healthlinkbc.ca/nursing-services For dietitian services : https://www.healthlinkbc.ca/dietitian-services For pharmacist services: https://www.healthlinkbc.ca/pharmacist-services For qualified exercise professionals: https://www.healthlinkbc.ca/physical-activity-services Return to top SENIORS ON THE MOVE TRANSPORTATION OPTIONS Need help getting around British Columbia? This is an initiative of B.E.S.T. (Better Environmentally Sound Transportation). You can find various transportation options: public transit, HandyDart, as well as community shuttle services, taxis and private driver services,volunteer ride programs, and walking groups in various regions of the province.. Web here : https://www.seniorsonthemove.org/transportation-options-for-seniors-metro-vancouver#/ Return to top STAR BC SENIORS ADVOCATE Speak with an Information & Referral analyst or consult website about health care, housing, income supports, personal supports, transportation. Seniors’ services research reports and Long-term Care Quick Facts Directory. Provide feedback on seniors’ services. Hours: 8:30 a.m. – 4:30 p.m. Monday to Friday (except statutory holidays) Contact: Dial: toll-free 1-877-952-3181 or in Victoria 250-952-3181 Web: https://www.seniorsadvocatebc.ca/ Return to top BC Seniors Advocate SENIORS ABUSE & INFORMATION LINE (SAIL) SAIL is a province-wide confidential service for older adults, and those who care about them, to talk to a trained intake worker about abuse or mistreatment. Seniors will receive information and support about issues that impact their health and wellbeing. Multilingual: Yes, upon request (180 languages) Hours: 8am-8pm 7 days/week (excluding holidays) Contact: Dial: 604-437-1940 or toll-free 1-866-437-1940 TTY equipment: 604-428-3359 or toll-free 1-855-306-1443 Web: http://seniorsfirstbc.ca/programs/sail Return to top Seniors Abuse & Information Line (SAIL) CRISIS CENTRE OF BC Immediate access to barrier-free, non-judgmental, confidential support and follow-up to youth, adults, and seniors throughout 24/7 phone lines and online services. The Distress Services program provides support to vulnerable individuals across British Columbia. Multilingual: Yes (140 languages) Hours: 24/7 distress phone line and online chat services between noon and 1:00am Contact: Dial: Vancouver Coastal Regional Distress Line: 604-872-3311 Anywhere in BC 1-800-SUICIDE: 1-800-784-2433 Mental Health Support Line: 310-6789 Web: https://crisiscentre.bc.ca/ Chat: Adults: www.CrisisCentreChat.ca (Noon to 1am) Return to top Crisis Centre of BC Ability 411 ABILITY 411 Web-based service for answers to questions and practical information about technologies, tools and equipment that increase independence and wellbeing for BC seniors, and support their families and care teams. Multilingual: Use an online translation app Web: https://www.ability411.ca/find-answers Ask a question https://www.ability411.ca/ask-new-question AssistList ASSIST LIST “Helping simplify the exchange of home health equipment for our community” with blog, resources and searchable database of equipment listings , …”facilitating safe exchanges across Metro Vancouver by creating a network of Community Exchange Zones to help us facilitate safe exchanges across Metro Vancouver. ” Non-profit operated by staff and volunteers; funded by partners and donors. Multilingual: Use an online translation app Hours: equipment list is available 24/7 here Contact: online here with questions

Devenez partenaire : Si vous êtes une organisation publique, à but non lucratif ou confessionnelle au service des aînés de Vancouver, nous aimerions collaborer avec vous! Rejoignez le Hub Council : Apprenez-en davantage sur notre Westside Seniors Hub Council, composé de personnes âgées bénévoles ou de personnes travaillant avec des personnes âgées. Nous recrutons continuellement de nouveaux membres. Rejoignez un comité : Les comités centraux sont des groupes axés sur des problèmes et axés sur l'action, composés de représentants du Conseil, d'organisations partenaires et de la communauté. De 2015 à 2019, nous avons eu 3 comités actifs travaillant sur divers projets : santé et bien-être; accès & mobilité et communications. Compte tenu de l'approche holistique de notre projet actuel, Dementia Ventures, les membres du comité travaillent maintenant ensemble pour résoudre les problèmes en collaboration. In 2024 we currently have three major projects. Food Security, Housing for Seniors, and our ongoing Dementia Ventures project. Devenir un partenaire Partenaires actuels Learn about the Hub Council Contact us to join the Hub Learn More about Projects Dementia Ventures Opportunities JOIN THE HUB There are many ways to become involved in the Hub. We are always looking for new members.

PROGRAM LEADERS YOU can help create a sense of belonging for people with dementia deliver diverse experiences facilitate expression of feelings stimulate the senses and emotions It is so important to remain socially, mentally and physically active when experiencing cognitive decline. Program leaders are essential partners in offering meaningful activities that are fun and inclusive, so community members living with dementia and their care partners look forward to participating. This website's Resources will help you understand how to engage and adapt your leadership skills so your language and approaches resonate and encourage everyone to remain active and involved in your programs. Hub Partners would like to hear from you! Visit the Current Hub Partner Projects page to see which project is most attractive and contact the Partner sponsoring it

Dementia Ventures - Impliquez-vous Le renforcement des capacités pour une participation communautaire significative des personnes atteintes de démence est un effort conjoint qui nécessite: écouter et répondre aux besoins établir et renforcer des relations créer des opportunités Nous vous invitons à apporter votre énergie et votre créativité pour planifier, mettre en œuvre et soutenir Dementia Ventures . Il s'agit d'un effort de collaboration motivé par les besoins des personnes atteintes de démence et de leurs partenaires de soins. cependant, il faut un large éventail de compétences et de capacités pour leur apporter de la joie et des opportunités Voyez comment VOUS pouvez aider. Cliquez sur les liens ci-dessous pour voir comment. Personne vivant avec la démence Responsable de programme du partenaire de soins Bénévole Professionnel travaillant avec des personnes âgées Building capacity for meaningful community participation by people living with dementia is a collaborative effort that requires: identifying, expressing and responding to needs establishing and strengthening relationships creating accessible opportunities using diverse skills and abilities to have impacts We invite you to contribute your energy and creativity to plan, deliver and sustain Dementia Ventures . This is a collaborative effort driven by the expressed needs of people living with dementia and their care partners. Please click on the links below to see what your contribution could be. Person living with dementia Care Partners Program Leader Volunteer Professionals working with Seniors Si vous souhaitez rejoindre le Hub dans l'un de ces rôles, les partenaires du Hub aimeraient vous entendre. visitez la page Projets partenaires actuels du Hub pour voir quel projet est le plus attractif et contactez le partenaire qui le sponsorise consultez la page Opportunités où les organisations partenaires du Hub annoncent leurs besoins les plus immédiats.

Top of Reports & Data Rapports et données ALZHEIMER ASSOCIATION USA AA provides progress in promising research and treatments for all types of dementia. There are links to clinical studies underway and recruiting participants whether experiencing memory loss or supporting those who are. Research progress here BUILDING CAPACITY FOR MEANINGFUL PARTICIPATION BY PEOPLE LIVING WITH DEMENTIA (UBC-Lakehead Universities, WSH, NWDWG 2020) “Project aims to enhance and promote opportunities for people living with dementia, including dedicated and inclusive physical and social activities that account for the interests and needs of people living with dementia…fosters connections in community and the growth of initiatives based on community capacity and interest.” Information here CANADIAN CHARTER OF RIGHTS FOR PEOPLE LIVING WITH DEMENTIA (Alzheimer Society of Canada 2019) “The Charter defines seven explicit rights to empower you to self-advocate as a person living with dementia in Canada…ensures that the people and organizations that support you will know and protect your rights.” Right #4: “To access support so that I can live as independently as possible and be as engaged as possible in my community.”
 Information here THE HUMAN RIGHTS OF PEOPLE LIVING WITH DEMENTIA: FROM RHETORIC TO REALTY (Dementia Alliance International 2016) “A basic introduction to Human-Rights Based Approaches (HBRAs) – a UN approved system, which has been applied across all sectors… focuses on ways in which the Convention for the Rights of Persons with Disabilities (CRPD) can be used to promote the well-being and quality of life of people living with dementia.” Information here A DEMENTIA STRATEGY FOR CANADA: TOGETHER WE ASPIRE (Public Health Agency of Canada 2019) “It is possible to live well and achieve quality of life at all stages of dementia through compassionate diagnosis, connection to support systems, increased awareness of dementia among all Canadians and reduced financial hardship for those living with dementia and their caregivers.” Information here Return to top DEVELOPING CULTURALLY GROUNDED DEMENTIA EDUCATION MATERIALS FOR INDIGENOUS COMMUNITY-BASED CARE (Jacklin & Blind 2018) "ICARE investigators and research staff worked closely with our community advisory members and Tribal Leadership to develop" a suite of tools: Dementia in Indigenous Populations ; 
Underlying Frameworks: Cultural Safety & Two-Eyed Seeing ; 
Indigenous Understandings of Memory Loss & Aging ; 
Fact Sheets ; Dementia Care for Indigenous People and their Families. Information here ADDRESSING STIGMA: TOWARDS A MORE INCLUSIVE HEALTH SYSTEM 
(Chief Public Health Officer of Canada, 2019) “Stigma is associated with poorer physical and mental health outcomes …and cannot be understood or treated separately from stigma related to other characteristics such as race, gender, sexual orientation, age, and income…We can stop using dehumanizing language, examine our own assumptions, and implement policies and education programs, while also measuring our progress towards stigma elimination.” Information here RISK REDUCTION OF COGNITIVE DECLINE AND DEMENTIA (WHO 2021) “Guidelines for risk reduction…provide evidence-based recommendations on lifestyle behaviours and interventions to delay or prevent cognitive decline and dementia.” Information here WORLD ALZHEIMER REPORT 2019: ATTITUDES TO DEMENTIA (Alzheimer’s Disease International, ADI) ADI’s 2019 global survey of attitudes to dementia and recommendations “to take action, to improve awareness, to help dispel lingering myths around dementia and ultimately aim to reduce or even eradicate stigma.” Information here VIRTUAL CARE FOR PATIENTS WITH ALZHEIMER DISEASE AND RELATED DEMENTIAS DURING THE COVID-19 ERA AND BEYOND (Canadian Medical Association Journal, March 15, 2021) Virtual visits have unique challenges but can potentially improve access to health care for those experiencing dementia. Evidence demonstrates that videoteleconferencing can be useful in assessment, planning, and management of a diagnosis. There is much research underway to overcome barriers and adapt modalities for direct-to-home care. Information here Back to Resources - Dementia Ventures

Dementia Ventures… Renforcement des capacités Dementia Ventures crée des occasions communautaires significatives pour les personnes atteintes de démence de rester actives et engagées. Veuillez participer à la création d'une communauté plus inclusive et à l' augmentation de la citoyenneté sociale pour les personnes atteintes de démence . Dementia Ventures renforce la capacité de la communauté à inclure les personnes atteintes de démence dans des activités significatives! Les organisations partenaires du Westside Seniors Hub travaillent à adapter les programmes actuels et à créer de nouveaux programmes inclusifs et permettant aux personnes atteintes de démence de socialiser en fonction de leurs intérêts. Vivre avec la démence implique de poursuivre ses passions! Les communautés qui offrent diverses possibilités démontrent que les gens peuvent rester des contributeurs dynamiques à la vie communautaire bien au-delà d'un diagnostic de démence. Envie de vous impliquer? Si oui, êtes-vous? éprouver des difficultés cognitives un partenaire de soins un chef de programme un professionnel travaillant avec des seniors un bénévole motivé Vous pouvez aider les organisations partenaires du Hub à développer des activités artistiques , sociales , de fitness et de bénévolat attrayantes et durables. Les partenaires du Hub veulent que les personnes atteintes de démence et leurs partenaires de soins expriment leurs besoins et leurs désirs. Les partenaires ont également besoin de l'aide de responsables de programme, de bénévoles motivés et de professionnels travaillant avec des personnes âgées. S'il vous plaît Impliquez-vous ! L a vue d'ensemble… Action collective des aînés et de leurs partenaires de soins De 2019 à 2023, le Westside Seniors Hub se concentre sur Démence en collaboration avec le Université de la Colombie-Britannique et Université Lakehead à Thunder Bay, Ontario. L'Agence de la santé publique du Canada finance le projet-cadre intitulé Renforcer les capacités pour une participation significative des personnes atteintes de démence . Il s'agit de l'un des premiers projets de recherche communautaires financés dans le cadre d'un plan global de l'Agence de 2019: Une stratégie sur la démence pour le Canada . Dementia Ventures is building community capacity to include people living with dementia and their care partners in meaningful activities! When communities provide diverse opportunities for these people to engage, they can remain vibrant contributors to community life well beyond a dementia diagnosis. Living with dementia shall include pursuing one’s passions! Dementia Ventures invites you to get involved in creating a more inclusive community and increasing social citizenship for people living with dementia. Join us in adapting current programs or creating new ones that are inclusive and enable people living with dementia to socialize according to their interests. Westside Seniors Hub Partner Organizations have a variety of opportunities underway to be more inclusive. Join any of our current projects described here . There are opportunities for anyone to help make communities more dementia-friendly. Get Involved Current Hub Partners Projects SoundBytes Series Fireweed Club News & Events Resources WE NEED DIVERSE PARTNERS TO HELP BUILD CAPACITY FOR GREATER INCLUSION! Everyone's skills and experiences can make a difference. Perhaps you are experiencing cognitive difficulties a care partner a program leader a professional working with seniors a motivated volunteer YOU can assist Hub Partner Organizations develop appealing and sustainable arts , social , fitness and volunteer activities. Hub Partners want people living with dementia and their care partners to express their needs and desires. Partners also need the assistance of program leaders, motivated volunteers, and professionals working with seniors. THE BIGGER PICTURE... COLLECTIVE ACTION BY ELDERS AND THEIR CARE PARTNERS From 2019-2023, the Westside Seniors Hub is focusing on Dementia Ventures in collaboration with the University of British Columbia and Lakehead University in Thunder Bay, Ontario. Find out more about the UBC and Lakehead University research team members here . The Public Health Agency of Canada is funding the umbrella project called Building Capacity for Meaningful Participation by People Living With Dementia . It is one of the first community-based research projects funded under a 2019 Agency comprehensive plan: A Dementia Strategy for Canada .